Peripheral Nerve Hyperexcitability (PNH) Community
Isaacs
About This Community:

This patient support community is for discussions relating to Peripheral Nerve Hyperexcitability (PNH) and the various conditions related to it such as neuromyotonia (NMT), cramp fasciculation syndrome (CFS), benign fasciculation syndrome (BFS), Isaacs syndrome and others.

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Isaacs

I was just told i have Isaac syndrome by my doc.  Does this shorten your life expectency?  He didnt give me a straight answer.
Thank you.
Gave me tegerol?  Is it safe to use?
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Tegretol is safe to use and is an anti-seizure medication-one medication to treat the condition. Prognosis or life expectancy is uncertain as this pont according to research. Symptoms are usually well controlled with medication. For more information visit the NINDS website, it's the Isaacs syndrome information center.
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