i've been ill for nearly 3 yrs now i thought i had MS but tests are negative i am going to see a neuromuscular consultant who specialise in MG and channalopathies in a few weeks.
I have sweating,muscle contractions that never relax in my whole body but limbs and trunk the worse,aching jaw,swallowing and singing hard get a hoarse voice,have constant lump in throat that makes swallowing painful, fatiuge so bad and my limbs feel like there solid and stiff like concrete i wake in the night or morn with my hands in a tight ball dug into my hands and my legs curled tight and covered in sweat.
i have had ent test,mri,thyroid,hormone i think a neuromuscular consultant is finaly in the right direction.
what is the difference between neuromyotonia,issac;s syndrome,CFS,and BFS?are these not all the same?
i get pain with mine does this mean it is not NMT? but something else and if so what?
Your symptoms sound consistent to Neuromyotonia / Cramp Fasciculation Syndrome
You can Google the Isaacs Syndrome Chat Centre Board. I was disagnosed with 18 months ago
Threre is an excellent chat there Isaacs Neuromyotonia vs Cramp Fasciculation Syndrome
you would be most welcome to join us.
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