Pregnancy 18-24 Community
MTHFR
About This Community:

This patient support community is for discussions relating to pregnancy and childbirth in women age 18 to 24.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

MTHFR

Hello I was wondering if anyone in here has been diagnosed with MTHFR and if so what does your doctor have you taking?  I have had 6 m/c and have tested positive for MTHFR, but my doc tells me that there is little know about it.  I have read up on it and it seems that I need to be on extra Folic Acid, B6, B12 and 81 mg aspirin, but my doc said that I didn't need those so he wouldn't give them to me???? Can anyone help with this situation???????
Related Discussions
10 Comments Post a Comment
Blank
299356_tn?1218119764
Uh...I have two friends with this and they definitely take an Rx type of vitamin.  I'll have to find out what it is and let you know.  But, yes, there is something he should be giving you, especially have 6 losses!  I'm so sorry.
Blank
299356_tn?1218119764
Here is what one of my friends wrote to me:

The vitamin that I take is acutally called the MTHFR vitamin.  It is compounded for me at "The Specialty Pharmacy of St. Louis"  It actually says on the bottle "MTHFR  (folic acid, B6,B12) Vitamin # 2619  4MG, 200MG, 500MCG"  
     Whoever this info is for, will need a prescription from her Doctor. And insurance doesn't automatically cover this med. She will have to pay full price ($66.00), and then mail in info to her insurance company to see if they will cover any of it.

That's all the info I have for it. Plus, I don't know if it's just me, but it gives me "morning sickness" the first 3-5 hours I'm awake in the morning.  Yuck.
Blank
422823_tn?1229740447
I have and my doctor attributes my m/c to it.   I take extra vitamins for the folic acid and I take daily injections of Lovenox while pregnant, and I swear by it. i hate the shots but Im just about it my third trimester,  and I attribute my baby's life to them.
Blank
Avatar_f_tn
Thank you both for the info.  I think I will go to the drug store and just purchase the over the counter folic acid, B6, and B12 since my doc won't give them to me.  We actually tried the lovenox this last pregnancy, but it didn't help, but of course I wasn't on any extra vitamins so don't know if that was the cause.  Becky do you know if your friend was taking lovenox shots as well or just the extra vitamins?
Blank
287479_tn?1272733964
wow, i should dbe an expert on this by now!

i was diagnosed with it in feb. i take 1 shot of 40mgs lovenox a day, one folic acid tab, one prenatal, and prometrium after i ovulate (prometrium is for my progesterone issue). i have had 3 failed pregnancies before i found out, and one failed pregnancy after i found out. i have been ttc again since june with no luck. if you have any questions just ask! i know how confusing it can be!
Blank
Avatar_f_tn
Ok ladies, what is the name of the actual blood test that they do to test for that. And is it actually a blood clotting disorder.
Blank
287479_tn?1272733964
there is not a specific name for the test. what they call it is a "miscarriage workup". they test for about 13 different things.

and yes, it is an acutal blood clotting disorder, which is why lovenox and/or 81 mgs of aspirin is a must. the reason why mthfr causes miscarrage (miscarriage) is tiny blood clots get caught in the placenta, which causes the flow of oxygen to get cut off from the fetus thus the pregnancy ends. if you get this disorder you should not ever take birth control again, because bc increases the chance for blood clots. bc with this disorder can be deadly.
Blank
299356_tn?1218119764
Neither of my friends have taken shots, only the pills.
Blank
287479_tn?1272733964
there are several different "factors" with the disease. i have factor 5, which requires the blood thinner. some people who have the same disease have a different factor form and do not require anything except extra folic acid and/or baby aspirin.
Blank
Avatar_f_tn
Thank you all so much, It amazes me how much is known about this, when my doc says nothing.  I guess he would rather save money than to give me a few extra vitamins that could save our next baby. I think it is a great time to switch doctors.   Thanks again to everyone of you and God Bless you all.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Pregnancy 18-24 Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Pregnancy Answerers
9121436_tn?1407983102
Blank
showard022
7283364_tn?1401049650
Blank
GeekMom1213
ME
7174950_tn?1406664709
Blank
tishaxx
8765505_tn?1399768536
Blank
ash060115
Ireland
9797462_tn?1410755278
Blank
Staceyyyyy91314
Indianapolis, IN
Avatar_f_tn
Blank
mummainoz