Has anyone else been through this i dont know what to do?
Yesterday i went to have my 20 week scan at the hospital. I took my mum with me as i was so excited and i wanted her to see her grandchild on the screen. After about 20 mins the lady finished the scan and then hit me with some shocking news. She had concerns about my baby's head, she has check the spine over and over as usally if there are problems with the head it normally comes from the spine but the spine is completely fine. However, there seems to be a lot of fluid on the brain. The word she used was servere! At which point i switched of as i think i was in shock and mum took it all in for me. I have been made an appiontment at Manchesters St Marys on Wednesday but they have told me to prepare myself for the worst.
Well my niece had fluid on her brain when she was born they never saw it on the 20 week scan... Appsrently her mommy contracted CMV sometime during the pregnancy.... I hope that everything is fine with your baby, but I know my niece is not okay she has had 7 brain sugeries already and she's not even one.... It could be a totally different situation for you tho so I don't want to scare you.... You definatley need to talk to the dr about what was seen on the ultrasound it also could be nothing more than a cyst which could go away on it's own
My daughter who is now 4 years old also had water pockets on her brain at my 19 week scan. It's really nothing to be to concerned about.. My doc told me some babies have them & some dont.. but 95% of the time, they go away. By my next scan at 26 weeks, all the pockets were gone! Your baby should be fine!
Water on the brain isn't something that should not be worried about. I stress this so much, because there are many chromosome abnormalities that produce water on the brain.
I had my first born in 2002 a little girl. She sadly passed away 30 minutes after birth due to a genetic disorder called Apert's Syndrome. Apert's Syndrome does present with water on the brain, webbed toes and fingers...which can be so severe that the digits are fused at the bone instead of the skin. She also had missing internal organs, and a cleft palate and lip.
Babies born with Apert's can survive, but they due so with very limited lives. They often need cranial(head) surgery to fix the malformed head and make room for the brain to grow. With Apert's syndrome the fontanels(soft spot on baby's head) close to soon, which does not allow the brain to grow normally, and results in swelling, and water on the brain.
There are no known tests out there for this disorder. I never knew my baby girl had any of these problems until she was born. I went into labor thinking I was going to have a healthy and happy daughter, only to go home empty handed. I suggest talking with a geneticist about your baby's issue, and maybe a geneticist can tell you what and if your baby is suffering from a genetic disorder such as Apert's syndrome.
I am not sure if this is the same as the water but at my 18 week ultrasound my daughter had choroid plexus cysts in her brain. The ultraound lady didn't say much until after the ultraound. She said that my baby should be ok because she checked her hands and feet and they weren't webbed and checked other signs of I believe apert's syndrome such as the strawbery shaped head. When I spoke to my doctor she said that they should disappear within a few weeks and be gone by the time she is born if that makes sense because she didn't show anyother signs of abnormalities. I did have a very healthy and active baby girl.
I think you should just talk about it with your doctor and they will let you know if it is severe or not.
thanks guys, i know i've had a bit of a panic on over the weekend as i've not really been able to talk to anyone. I managed to get 14hrs sleep last night after not having anyway for 2 nights. I think i'm thinking a bit clearer today. My heart still feels as if it's been renched out of me thou. I'm sorry you guys have been through a similar thing. But good to hear other peoples views. I'm so sorry for you (BTS1022), i can only imagine the pain you suffered at the loss of your daughter and majikat it must be hard for your family also.
I've just been feeling so at a loss as all i've really been told is there's alot of fluid and it's looks really bad and that i may have to terminate my pregnancy. But i have woke up this morning and been able to call a few organisations and no matter what the out come it's completely my husband and my choice. So i will see the experts on wednesday and try to take in all the facts on this condition. But the way i look at it is if his heart is still beating then there is a chance however small.
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