Hi I just went through the same thing I had a scan done a 8 week everything wa great but at 10 weeks I went o hospital becaus I was not feeling well and I wa told the baby had no heartbeat an that I had. Really big head which was swollen. In a way that is helping me to grieve.because I am not sur I woul have been able to cope if the baby wa born with abnormally.i know it is hard knowing your baby has a swollen heard but knowing early I bette than knowing late. All he best speak to your doctors or nurses they will advice yu on what to do
Im 25 and at 8w they told me about extra fluid around fetus head and said it can be chromosonal abnormality and gave me the option to terminate , so i did DS test so 2weeks after it came bk 1:100000.
At 14 weeks i did a CVS and got the result back as normal but on my 15w the ultrasound showed swelling at the back of its head i am now currently 16 weeks and am goin for my next scan in 2weeks to see if its still there as the dr said my baby could have stability and co -ordonation problem, jus wonderong if anyone else had a similiar problem? And if the swelling was nothing to be worried about?
I am going through the same thing right now. I have to wait a week to find out if the fetus has down syndrome. I am wondering how often swelling on the back of the head actually translates to down syndrome. Waiting is painful.
I am currently 19wks and was pregnant with twins in which I miscarried one of them at 8 wks. I just had my 20 wk sonogram in which I was told there was swelling around my babies head, also his/her heart is pumping slowly and therefore is in distress.
My doctor gave me the option of termination and then tells me if I do carry the baby full term that it won't make it. I'm looking for a second opinion but in the meantime is also looking for someone who has also been in this same predicament in which a doctor gives you an option of termination but you go against it.
Please help.....
Thank you......
My daughter was born 7 years ago in November. It was never caught on ultrasound but she also had fluid on the brain...she had Aperts syndrome, a cranial facial chromosome disorder. Aperts is an extremely rare disorder, and usually effects female fetuses/babies. A lot of children can lead partially normal lives with the disorder, but unfortunately my daughter passed away 30 min after birth. The fluid on her brain was not revealed until autopsy. I would google Aperts syndrome, and maybe bring it up to a genetic counselor. There are no tests that can be done to diagnose Aperts syndrome. Most parents don't even know anything is wrong with their baby until they give birth.
If your interested in having your doctor check for Aperts syndrome you can email me for some more info on it. Also have them check for fused fingers and toes...fusing of the fingers and or toes is one of the tell tale signs of Aperts syndrome. There are also other signs such as cleft palete and cleft lip. Eye sockets tend to be shallow as well, and they usually have an appearance of a cone head.
Aperts Syndrome is when the soft spots on a babies head closes prematurely, when that happens it leaves no room for the babies brain to grow normally, so the head tends to grow upwards instead of in a round manner. Closing of the soft spots when in utero can cause fluid or water to develope on the babies brain. I can go further into detail, but this is all I will go ahead and state. If you want anymore info to take to the doctors please feel free to email me. This is a Genetic disorder I am very passionate about, mainly because parents NEVER know their babies have it until birth. I want doctors to be able to make their expecting patients well aware of rare disorders like this, instead of disorders that happen more often.
An amnio can't safely be done until 16w, and CVS can't safely be done except between 10-13w.
Fluid on the brain CAN sometimes go away, and also it's a soft marker for several genetic problems.
I know how tough it is to consider a genetic issue since my first son has Down Syndrome (he was born when DH and I were 21)... so if you need to talk or need support just send me a private message.
Cindie