multicystic kidney

[marley1027]

I'm new to these boards and new to the whole pregnancy thing, this being my first.  I was just given a level two ultrasound where my fetus' right kidney was diagnosed as being multicystic.  They could not tell me how many cysts or if function had ceased in the kidney.  The left kidney appears to be ok, but I must continue to be monitored.  I am 25 and 1/2 weeks and EDD is 5/3/08.  I was just looking for some info.  Other mothers who successfully overcame this situation.  I am not looking to embelish any negativity, so if you don't have much positive to say, I'm not sure I want to hear it.  My mother was recently diagnosed, at age 58, with 20% function in one of her kidneys.  Her doctor told her it was congenital but did not mention polycystic kidney disease.  Again any hopeful info is welcome.  Thanks.

[Amberyann]

Hello, I know you posted this in 2008.. Just reading , as I am going through a similar situation , I wondered what the outcome of your baby was.. I hope this message finds you and your baby in good health. Thanks

[StaceyChap]

Hello,
Im 22 weeks pregnant, and have had the exact same diagnosis on my 20 week scan. We were referred to another hospital who gave us a thorough scan which showed the right kidney full of cysts and enlarged, but as the left kidney seems to be functioning OK and the fluid levels around baby are fine, then the consultant seemed quite positive. I will be scanned at 28 weeks and again at 34 weeks to check the function of the normal kidney, and if it stays working OK then baby will be delivered as normal when she is ready. If it looks as if the multicystic kidney has got bigger and is putting pressure on baby's other organs they may deliver her at 35 weeks.  They can then treat her.

I was very scared when i first found out, but having spoken with a couple of other woman who had the same diagnosis and now have perfectly healthy babies, i'm feeling so much better.

According to what i've read else where and in conversations with others, the baby will be tested once it is born, and they will regularly scan the baby's kidneys every 6 months until she is about ten.

Here is a link to a site that really explains things: http://66.102.9.104/search?q=cache:YJ_sayQ2p6sJ:www.kidney.org.uk/kids/mcdk/+MCDK&hl=en&ct=clnk&cd=1&gl=uk

I'm trying not to worry too much at this stage as the baby has developed OK, her brain and heart are fine, all limbs measure up to what they should be.

I hope you have found this helpful.

Hope everything goes well for you.
Take care

[JoyRenee]

http://www.pkdcure.org/site/PageServer

http://www.mayoclinic.com/health/polycystic-kidney-disease/DS00245

I am having a hard time finding a support group or forum geared specifically towards this, but I'll look a little bit more.

[JoyRenee]

I've never heard of this and I want to wish you the best of luck! Maybe try a support group specifically geared towards your specific issue because there's so much diversity here, you may not even get one answer.

http://www.peacehealth.org/kbase/shc/shc75.htm

I'm not telling you not to stay here, you're more than welcome! We definitely want to know what is going on with your little one and to help you. But I just want to make sure you get adequate support and answers.

The fact one kidney seems fine is GOOD. Because we really only need one kidney. Your baby might have to have a special diet when they are older, but again, I do not know much about kidney disease.

Good luck, sweetie!