prader willie

Anyone know of or have prader Willie syndrome? My baby was just diagnosed with it and I wpuld love some input.

[jclay1019]

My younger sister has it... my mom can tell u lot about it. What r u wanting to know? If u have a fb account I could give u her sn to talk with her about it more.

[samantha4740]

Yes. My name on Facebook is Samantha neiderer. I would love to talk to her about it. Or you could give me hers so I could contact her. Thankyou so much.

[camerinj]

I taught a student with prader Willi. It's difficult, but a support system will work wonders. Just read up as much as you can because there is a wide spectrum and be prepared for anything. Sorry I can't be anymore help than generic advice.

[samantha4740]

That's okay. I just want as much advice as What I can get.

[crazymom9]

My brother has this syndrome  I'm being test to see if the baby has it. My down syndrome and prader willi which it harder for my mom

[crazymom9]

My brother*

[jclay1019]

Her name is Gretchen Lind... the prfile pic will be of her and my younger sister together.

[samantha4740]

Okay thankyou. I sent her a request.

[samantha4740]

Did She recieve it?