Partial Molar Pregnancy-What to expect.

[Gabbster1]

Hello all,
Just catching you up on results from tests done after my miscarriage last month.  I was called by the Dr. and told that my genetic info showed the fetus had 69xxx chromosomes which was indicating a molar pregnancy, however, the pathologist couldn't find any other indications of a molar pregnancy through the tissues.  They are treating it as a partial molar preg.  But I am baffled, there was a baby.  It had a heart rate of 167.  SO how is this a molar pregnancy.  Now I am scared.  They also said I have to check hcg levels for the next 6 months!!!  I can't get pregnant for at least that!  I am 39 and this is freaking me out!  Then on top of that, they say if there is tissue left, it could become a very aggressive cancer called choriocarcinoma.  So I am so worried.  Has anyone had a molar pregnancy?  What am I to expect?  I am scared to try again now.  And I am wondering if I have a possible cancer growing now.  Any advise would be much appreciated.

[Gabbster1]

Thank you both for sharing your comments.  You know, when you hear things that you never even knew existed, it scares you.  Then you believe the worst is still yet to come because you just don't know enough to understand how things work.  I am meeting with the doctor on Wednesday to hear what the plan is.  I will let you know what happens.  It makes me wonder if I should even try for my baby number three.  Am I just putting myself at risk?  And the baby?  It makes me so sad because I really want to love another and it breaks my heart when my daughters ask me when their sister or brother is going to come.  They have been waiting three years for this as well.  How am I going to accept that maybe it is just not meant to be....

[forestfairie]

I had the same partial molar pregnancy 13 years ago. Unfortunately for me the OB I had at the time constantly told me everything was ok (even though I was spotting and had alot of discharge) and I didnt get an us showing the molar until week 7. Basically it was explained to me that sometime early on the fetus miscarried and everything else was left behind (placenta, sac etc) the body continues to grow a mass in place of the fetus thus creating the tumor. By the time my molar was found it was a pretty large tumor and I was VERY sick from it. I ended up having an emergency d and c to remove it after I started hemorraging. I was told not to get pg for 2 yrs in which time I was to be monitored to make sure it didnt grow back. I was never told or given info at all that it could become cancerous (not saying thats not true at all I just wasnt given any info).

Anyway long story short I met with another dr who thought that 6 months was more than reasonable for me to wait so I did that. 6 months later I got pg with my now 12 yr old dd. I was monitored though to make sure there wasnt a tumor growing in there with her but thankfully everything was ok.

I think just follow your drs orders and wait the amount of time asked of you. Continue to be monitored to make sure your ok. Im really sorry for your loss. I know how painful that can be :(

[adgal]

I am a big believer in testing.  3 of my losses were chemical, so there was nothing to test, but with the 2 that went longer I had it done.  Sometimes they can find things that are correctable, and personally, I believe information is power.  It's good you did as now your OB or RE can take the right steps to make sure your safe healthwise.  Honestly, I know it sounds scary, but if you really think about it, if your Dr. thought you did have cancer, they would not be taking any chances.  They would begin treating you immediately.  I am not making light of it, I completely understand why you would be worried.  In your shoes I would feel the same way.  But it really does sound like you are getting excellent medical care and intervention now, which is so important.  Take good care and I wish you all the best.

[Gabbster1]

Thanks for the advice.  I am feeling worried, but I hope everything turns out.  I wonder if my first was a partial molar too since sometimes it can repeat.  I had the very same thing happen in that loss.  We never did testing.  Thank god I decided to test this time even though everyone was telling me not to.  Can you imagine if I never knew and then developed cancer?  Scary.

[adgal]

When I was looking for answers on my first loss, I read up on molar and partial molar pregnancies.  My understanding is that in a partial molar there can in fact be a heartbeat sometimes.  You are doing the right think in seeking medical treatment..remember he said "if there is any tissue left behind cancer COULD happen".  It sounds like you have a very diligent Dr. who is taking steps to make sure that does not happen.  You must follow all your Dr.'s advice here and wait.  I know, it seems like forever, but it is in the best interest.  If they thought you had cancer now, believe me, they would not take any sort of wait and see attitude, they would be right on top of it today.  As for the likelyhood of it happening again, I don't think that is very common.  Molar and partial molar pregnancies are very rare.  I know it sounds scary, but try not to worry too much.  Just follow Dr.'s advice and all should be fine.  Good luck to you.