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Genetic Testing and Special Needs
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Genetic Testing and Special Needs

I have not personally had experience with disabling conditions or special needs in my family.  A friend of mine is a teacher who works with children with special needs.  She had a picture on her facebook this week of one of her students (with Down's Syndrome) affectionately sitting with his arm around another student.  Her caption was "Here's two of my special kids showing affection... if these two kids can show this kind of love and affection why can't we all get along? Special Education ROCKS!!!! Don't knock it until you experience their world. =)"  

A friend of hers submitted the following essay by Emily Perl Kingsley and I was very touched by it.  I wanted to post it on MedHelp, because every week I see so many expectant parents having to go through the difficulties of worrying if everything is okay with their unborn child.  Some find out that everything is indeed fine, perhaps they had a false positive, or something was said to them to make them think the child might be born with DS, special needs, or some disabling condition, and then further testing proved otherwise.  Or, in some cases, their concerns are confirmed and they find themselves thrown head first into unkown and frightening territory of raising a child with these conditions, or even wonder if their pregnancy should continue.  They come here looking for answers, for help, and while I cannot advise on the matter directly, I thought the following essay was so beautifully written that I'd like to re-post it here :o)


Welcome To Holland
by Emily Perl Kingsley

I am often asked to describe the experience of raising a child with disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
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i read this when i was pg and found out my dd has down syndrome.  i have to say holland is more beautiful to me than i could imagine.  sometimes you think that something is a certain way, different, maybe scary.  its like going on a ride at disneyland you never have been on.  you see it on tv, you hear others talk about it.  you are afraid and you really dont want to.  

you go on the ride and at first your heart pounds, you feel like you just want to get off and stay safely on ground.  then you realize it isnt scary, its fantastic!! its sometimes wild and sometimes not.  once you get off the ride you realize it was better than you ever dreamed.  that is how i feel about my dd.  i want to stay on the ride and go over and over and over.  you know that smile you see on peoples faces after they get off? well that is me.  
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7 Comments Post a Comment
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BRAVO!!! THAT WAS FABULOUS...
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377493_tn?1356505749
Thank you for sharing.  That was wonderful and will go a long way to setting many mothers and mothers to be minds at ease.
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764229_tn?1322523484
Very beautiful, I have 5 children with specail needs (adopted) but they are truely a joy to me and my family!!
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1173196_tn?1292920090
Thank you for posting that. I've seen it before, but it is really beautiful. I have an autistic daughter and it is so fitting.
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i read this when i was pg and found out my dd has down syndrome.  i have to say holland is more beautiful to me than i could imagine.  sometimes you think that something is a certain way, different, maybe scary.  its like going on a ride at disneyland you never have been on.  you see it on tv, you hear others talk about it.  you are afraid and you really dont want to.  

you go on the ride and at first your heart pounds, you feel like you just want to get off and stay safely on ground.  then you realize it isnt scary, its fantastic!! its sometimes wild and sometimes not.  once you get off the ride you realize it was better than you ever dreamed.  that is how i feel about my dd.  i want to stay on the ride and go over and over and over.  you know that smile you see on peoples faces after they get off? well that is me.  
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127529_tn?1331844380
This is one of my favorite ever things I have seen written. I have it in one of my journals here and I also have it on my Facebook profile.
I have a child in "Holland", I have one in "Italy" two. Both are beautiful, amazing and breath taking and I feel honored to be able to experience both. X
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419158_tn?1316575204
I have read that before and it never gets old, very beautifuly said/wrote:~)
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