This beautiful saga ends...sad update and thank you

[Violetasmom]

Hi all! I just wanted to update you all and again thank you for the hope, prayers, realistic stories. etc. On Wednesday, we started miscarrying. I had a prescheduled u/s so I went anyway and the doctor comfirmed it. My HCg had started dropping last Sunday from the ER visit. We had a really nice new military doctor as mine was out of town. My husband and I have liked her best out of all the doctors we have seen over the last year. She shed some new light on possibilities of problems since this was our third miscarriage with 11 months.

Anyway, she said that they have done new studies on the gene defect that they found after I lost Juniper, our first child. And that studies have shown that those with homocystine level issues can and do have recurrent miscariages not always because the fetus has a defect or chromosone problem but because of my gene mutation and defect with MTHFR. This problem, in addition to requiring extra Folic acid, can cause the placenta not to develop well enought carry and feed a perfectly healthy fetus...so we are again, more educated. I have been taking 2000 micrograms of Folic acid daily since last year but now studies have shown that immediately following confirmed conception I should be started on Lovenox. My regular OBgyn had discussed this with me last week and I was to start on them following my U/s yesterday but this new Obgyn said that I should have started right away(maybe if they woudl have seen me earlier!! that coudl have happened but lif is life) and Godwilling if there is a next time, this could be an answer if I start on them right away...they are daily injection shots in the abdomen that I would have to take for 36 weeks but hey!! this I would gladly do.:) We have had all the other testing even chromosone testing for Ted and I and we are compatible and healthy in all other aspects!

We opted out of a DNC and m/c naturally. The last three dyuas have been pure hell on the pain factor. I didn't sleep for over 48 hours. Last night I finally slept a bit and while I know have heavy cramping, it is nothing compared to the last three days. I could barely walk. It was never thsi bad with the other two. My husband took two samples of tissue to the hospital. They said they woudl do testing. I didn't have this opportunity with Juniper as we lost her on the plane and Ziggy was just too young to test. So, now I wait and pray and hope this pain ends soon.

I just wanted to update you all and thank you for taking this journey with me. I know my Hope coudl have been false Hope but I am glad I held out. I pray that if we get pregnant again it will be when we are stateside with better medical access and that we are settled in our new home. Until then, thank you again and GOOD luck with all of your pregnancies. God Bless, hope to be on here again one day as a pregnant mama.:) I am grateful for all my pregnancies as has been a true journey of love...I hope one day to have a child to hold here on earth but I am and will hold my my lost children deep in my heart for the rest of my days and am garteful for there existence. THere is no Joy like motherhood however brief the preganncy may be the mother stays with us all our lives.

For those of you who left post on previous post with your e-mail. I would have loved to e-mailed you but remember this site blocks out straight e-mail addresses so you have to write them a bit different. My email name on yahoo.com is 'thestarsplitter1" and I woudl be happy to correspond further with anyone through there. thanks again for all of your good wishes, thoughts and concerns. THis site is always a Godsend and I woudl not be able to do any of this without my fellow sisters!

[hopngfortwns08]

so sorry for ur loss and pray and hope u get a pg that sticks soon. :)

[MelzieWelzie]

I'm so sorry for your losses.  I was really hoping this one would work out for you.  I had 2 fairly recent m/c's, was found to have the MTHFR gene, was put on 4000mcg of folic acid and baby aspirin, and am now 25 weeks pregnant.  I hope you have the same luck now that you've discovered this issue.  Keep your wonderful positive attitude!
I hope you have a happy healthy pregnancy soon!
Melanie

[Violetasmom]

Jilmil and ttc37: I am so so sorry for your loss...tt37, good luck with your blood panel, its a double edge sword I hope they find something and I hope they don't!:) But information is power and soemhow helps us not feel so useless...the common feeling after m/c...

thank you all for your kind words...I thank you for your continued prayers and I do pray that all of you hold on to that Divine Hope that God blesses us with when we are pregnant, trying to get pregnant, and mourning the loss of pergnancy, we are Graced by mother hood no matter how long we have it... I will leave you all with this poem and will happily write each of you if you write to my email at yahoo.com, the name is thestarsplitter1  

Since this is and should be a board of Joy, I will end this thread with hope and this poem that a friend sent to me after my first miscarriage that strengthened me beyond belief. My personal plan is to get healthy, lose a couple of pounds, excercise and try again in 3 months maybe we will wait a bit because we are moving in June but we'll see as the Spirit calls...anyway, I'll see you all on the TTC boards and I'll check in with you on these boards if I can help others, in the meantime, my care and prayers remain with you here...in closing:

      Tiny Footprints on a Mother's Heart

    When a baby arrives,
    be it for a day, a month, a year or more,
    or perhaps only a sweet flickering moment-
    the fragile spark of a tender soul
    the secret swell of a new pregnancy
    the goldfish flutter known to only you-
    you are unmistakeningly changed...
    the tiny footprints left behind on your heart
    bespeak your name as Mother.

Godspeed and thank you!! all my fellow Mothers!!!

[tt37]

Having lost my first child 6 wks ago, I know something of the pain of the loss.  No one can ever tell you that they know how you feel, but you encourage me with your hope.  I too am hopeful for a baby and am trying to have a positive attitude without stressing out.    Good luck with your new doctor and your new information.  I am waiting myself to get all of that bloodwork done; I have 2 more weeks before it can be drawn....talk about anticipation!

[jilmil]

I am deeply saddened by your loss, and will continue to pray for you and your family.  I am sure, they day you will hold your own baby in your arms is not far off.  God is watching over you; He knows when the time is right.  You have been a great inspiration for so many of us reading your posts; I hope I can be like you.  Do keep thinking positive and continue to have that great attitude.  You will be in my daily prayers.

I m/c-ed last week as well.  Like you, I opted to go the natural way.  Hope I too will be blessed with a little baby someday soon.

[melimeli]

I am so sorry for you loss and I will pray that you get your little baby to hold in your arms..

[baby1234]

So sorry for your losses. Having two m/cs myself, I know how painful and devastating they are.

I am also compound heterozygous MTHFR. I took 5 mg of folic acid a day and baby aspirin, starting from the day they found I have this issue. I also started Lovenox the day I got a positive pregnancy test and used it for twelve weeks.

The end result? Twins. This condition is treatable. I am so glad that you found a doctor who is up to date on this mutation.

I wish you much luck and success in the future.

[ashort]

I'm so sorry to hear about your loss.  I actually did not see your other post but I found this one.  I had one m/c and I truly can't imagine what it must feel like to have more than one.

I also have an MTHFR gene mutation...so your post hits close to home.  I am compound hetero. MTHFR.  My dh and I saw a genetic counselor who told us that I have one copy of the A mutation and one copy of the C mutation ( not sure what the numbers after it are).  They have put me on extra folic acid and I'm taking a baby aspirin a day. My homocysteine levels are good though...so they don't think I need any shots of blood thinners.  

I hope they help you out when you get preg. again!  It seems like now you know just what you have to do...I wish you all the best...again I'm so sorry for your loss!

[lhughes]

I'm so sorry for your loss.  I hope this bit will give you encouragement, the guy I work with's wife lost 3 babies (1 little girl they wanted so badly) and is now 20 weeks pregnant taking those lovenex shots you mentioned.  They are having their second boy.  She gives them to herself and is doing really well on them.

Best of luck in the future, I hope your sadness ends here and the next time you'll have your baby in your arms and not just in your heart.

[pcarsey]

I am so sorry you are having to go through this time and time again! You are a fighter and an inspiration. Your attitude is very good! I am so glad you found the doctor that you lucked into seeing, because you come out knowing lots more and know what you have to do in the future to prepare for such things to happen again.

I do have a question though, if they know that you should be on extra folic acid from conception then why don't they just write you out a script for it so you can before you conceive? Just a thought. After I had my MC in May they continued me on folic acid so I would still have it in my system when I got pregnant again. Maybe you could talk to your doctor about what is right for you.

I wish you luck in the future and hope that you continue with the attitude that you have. Again, you are an inspiration! I will hold you and your family in my prayers!! Good Luck

Patty

[saj39]

I am so sorry for your loss. At a time like this I feel like words are so inadequit but I want you toknow that I am keeping your family in my thoughts and prayers. Please know if you need a shoulder to cry on that I am a good listener. Sheri