Aa
A
A
Close
1008869 tn?1283964857
Wish me luck..seeing what the status is of my boy today
Have two appoitnments today..one at Beth Israel and another at the Bostons Childrens Hopital today.  

From what I understand, we are having an u/s to determine if more fluid is in his lung since last time.  We also need to get an echocardiogram for him to see if it's a heart defect causing the fluid now that a virus/chromosome/genetic is ruled out.

We have an appt with neonatal surgeon (NOT until tomorrow!!) to go over everything being done today....It's so hard to wait.

BF is being so positive and I am trying real hard to be too.  

I have been an idiot and scouring google on his condition ...stupid stupid stupid . I just wanted to find out questions to ask but then found out so much bad stuff....uggg.

Please send prayers!!
Cancel
22 Answers
Page 1 of 1
1169162 tn?1331235953
Prayers are on your way.  Hopefully the fluid is less and the echocardiogram goes well.  I know this must be so hard and completely nerve wrecking, but remember how many other things with your little man have turned out for the positive.  This one will too.  It also sounds like you are in good hands - Beth Israel and Boston Childrens are wonderful.  Best of luck.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1173196 tn?1292920090
Good Luck Courtcoop. Try to relax. We'll all be thinking of you and your baby boy.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1116010 tn?1280024852
Good luck!  Praying for you and baby!!!!!!!!!!!!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Avatar universal
good luck
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
229760 tn?1291471470
Sending loads of prayers! Update us as soon as you can!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Avatar universal
Thinking of you & praying everything goes your way.  
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
147929 tn?1294855322
good luck!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
317019 tn?1327343013
good luck today!!!!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Avatar universal
Hi Courtney, Praying for you and baby Noah.  I am sure everything will be fine.  You are in the best hands with both these hospitals.  Stay positive.  Hugs! A
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
571099 tn?1308237748
day is done and hope your results are good.  Wishing you the very best..
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
419158 tn?1316575204
just wanted to see how everything went! Been thinking about you and your little man all day. I hope you got some good news! You deserve it:~)
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1008869 tn?1283964857
Hi girls...long day.
First sonogram...Long story short...he has a bit more fluid in his lungs now pressing slighly against his heart.

I am 30 weeks..but he is  measuring a week ahead on his head (31 weeks) and 2-3 weeks  BEHIND (26/27 weeks)on all of his "long" bones. He is either going to be a short boy or it is related  to  the fluid in lung issues (they do not know). Once again, its a sign of Noonans but everyone is unsure.

However, we rant o other hospital and had the echocardiogram.  His heart is perfect so the tech said this may be just a total fluke but does not have an answer where the fuild is coming from...but its not the heart.


Dont know how concerning the short bones are yet..3 weeks behind seems a lot.

We meet with the surgeon today.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Avatar universal
I'm sending prayers for the both of you.  You are a strong woman!  
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Avatar universal
My prayers are with you and your little boy.  BTW, a friend who was going to Brighams for her boy, her u/s until 2 weeks prior to delivery showed her son had a club foot.  She and her husband were going for counselling for that.  Every Dr was completely sure that this baby would be born with a club foot  Her boy was born completely normal with no club feet.  This shows that u/s and other tests can in correct.  We are here praying for baby Noah and hope everything will be fine.  Good luck
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
674725 tn?1367443230
Thinking of you and hope things look better.  Good luck , praying for you and Noah.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Avatar universal
Court-

Is Noonan's something an amnio would pick up???
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
503649 tn?1304361066
Thinking of you.  
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1008869 tn?1283964857
Followed up with neonatal DR today to go over results... and we are just keeping an eye on the fluid weekly...I feel better.

Todays DR does not seem to see any othe rmarkers for Noonans (usually heart defect)Noonans is not picked up by a amnio as it is genetic, not chromosonal. Two signs is fluid in lungs and short stature (as well as large head, low set ears, set apart eyes, webbed neck)

Can get a  genetic test that is not covered by insurance (@ $5k) so I would never bother.

We are playing the wait and see game at this point.  But I do feel much better about the process now.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
377493 tn?1356505749
Hey Court.  Just reading through this post and getting caught up now.  I am glad you are feeling better.  You are facing all these hiccups with such strength.  Your son is one lucky little boy to have such a strong and wonderful momma!!  I am not on as much, but I do check in to see how you and Noah are doing.  Sending lots of positive thoughts your way!!!  XOXO
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
873190 tn?1304816575
Hang in there.  You have a lot of support here, myself included.  I just wanted to say- whatever you need, just say the word.  Best wishes always.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Avatar universal
Hope you are doing ok and your wee baby boy Noah is fine too.
I'll will be praying for you as well.
Best wishes and lots of ((HUGS))
Erina
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
803938 tn?1403751853
Not knowing much be hard but try to stay strong for your little boy! You seem to have a very supportive partner, that must be very comforting.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Blank
Pregnancy Tracker
Track your pregnancy
Start Tracking Now
Recent Activity
6077797 tn?1479839771
Blank
pb95, and veronica0808 commented on veronica0808's status
1 hr ago
4769306 tn?1451008167
Blank
KeeLolo Who's ready for CHRISTmas, ... Comment
12 hrs ago
4625099 tn?1431317905
Blank
Grace358 commented on photo
16 hrs ago
Pregnancy: Age 35+ Community Resources