December 7th, 2009 at 20 weeks pregnant, our baby was prounced dead at our routine office visit, without a heart beat. Doctors tried to encourage a D & C, but this would be our only opportunity ever to meet our baby. We opted for the tougher road, hospital birth. Two days later we were induced at the hospital and we gave birth to a beautiful baby girl, Mimi. Her birth was an amazing and beautiful experience. Saying good bye to a still born new baby, is hands down the hardest thing I as a mother have ever faced. Four weeks later the doctors took 17 viles of blood and determined I have DVT and MTHFR. Has anyone had a successful pregnancy with one or both of these? If so, what steps must be followed? Is this genetic or something a person can just develop? We've had four healthy and beautiful children, but this loss has left us yearing for our lost baby. I'm nervous about getting pregnant again only to suffer another loss. This is our second baby that has died while I was pregnant. Our other one died at 14 weeks, nearly 11 years ago. Feedback?
I have no idea what those two things you were diagnosed with are but I wanted to express how sorry I am for your loss. Our first son was stillborn at 37 wks 3 days due to a cord accident. As you said, losing a child is the hardest thing a mother can ever go through. I'm glad that you opted for the route of giving birth and taking the opportunity to see your child. We did the same along with having a proper funeral/burial. As time goes on your pain will ease,though you will never forget your daughter and you will always have a special place in your heart for her. Something I like to do ....for his funeral my mom made a special candle arrangement and every year on his birthday I light the candle for a little while as a way of remembering him.
Thanks for the nice note. It is encouraging to hear others have traveled down this road as well. We had Mimi's memorial 2 weeks ago now and at times I still cry. I like the candle idea as a way to remember her. My other children would really cherish that. Thanks for sharing.
IM SOO SORRY FOR YOUR LOSS. I LOST MY FIRST BABY GIRL AT 25 WEEKS DUE NO AMNIOTIC FLUID. I HAVE MTHFR TOO TYPE 1 WHICH I DON'T NEED BLOOD THINNERS JUST EXTRA B6-B12 AND ANOTHER VITAMIN BUT I FORGOT THE NAME. MY PERI SAID IS A MUTATION AND IT PUTS YOU AT A HIGHER RISK FOR MISCARRIAGES. DO YOU KNOW WHAT TYPE DO YOU HAVE? RIGHT NOW IM ALMOST 36 WEEKS AND I HAVE TO TAKE ALOT OF VITAMINS SINCE THE MTHFR MADE ME GET ANEMIA SO I HAVE TO TAKE FOLIC ACID TWICE A DAY TOO ON TOP OF MY PRENATAL VITAMINS BUT THATS ABOUT IT FOR MTHFR TYPE 1. I KNOW WHAT YOU ARE GOING THROUGH RIGHT NOW AND THE PAIN I CANT EVEN EXPLAIN IT. I BEEN PARANOID THIS WHOLE PREGNANCY PRAYING TO GOD THAT EVERYTHING GOES OK AND A HEALTHY BABY. IF YOU DONT MIND ME ASKING WAS IS DVT? WAS THAT THE DIAGNOSIS? TAKE CARE..YOUR LIL ANGEL WILL ALWAYS BE WITH YOU..
DVT (deep vein thrombosis) is another thing I tested positive for. This is another blood clotting disorder. I'm still waiting for a call from my OB about the MTHFR strains I have. At this point the info is pretty new and I don't know much about it. How many other types of vitamins do you take? Is it only during pregnancy or after as well?
im so sorry for your loss...i have the same problem...i lost a baby at 18 weeks and then had another mc...my ob after my last mc put me on baby aspirin daily...im going to the doc tomorow to find out if im gonna stay on baby aspirin or start heperin...i pray for a healthy preg this time but im so scared...please feel free to stay in touch...i have my first appt tomorrow and im nervous
i do know that you can have successful preg with the problems...make sure you talk to your doctor about it....i developed a plan over a year ago (which was starting daily baby aspirin)....im not sure what will happen now but the truth is im scared
as i read this post i just cried! im going though some stuff and dont know if my pregnancy will make it til the next day!!!! i dont know much about the stuff you are talking about but i am truly sorry!
I have to take Folbee twice a day which is B6-B9-B12 and folic acid plus Ferrous Sulfate (iron) twice a day on top of my prenatal vitamins. My perinatologist said is a genetic mutation that makes my body not produce/eliminate those vitamins that are essential for a growing fetus. Since the one that i have is type 1 i don't need blood thinners but since you have DVT are you getting bloodwork to see how thick you blood gets? I did not know i had MTHFR till my baby was stillborn so they think that the placenta was not working propely thats why i did not have amniotic fluid since her kidneys were fine.
So now with this pregnancy they have a very close eye i get seen twice a week and with weekly ultrasounds and nst to make sure the fluid is within normal limits plus i have a bicornuate uterus which puts me at a higher risk for preterm labor. I think im a mess if is not one thing is another but thank god i made this far whith the help of my ob and perinatologist. Just talk to your ob and ask what are the chances of happening again and also the treatment for the pregnancy. i think everything will go ok now you know you have that so they will take precautions. Be positive i know is hard. And my ob said that once i have the baby i will have to go to a hematologist to see what he recommends. Please keep me posted and god bless..
Thank all of you for sharing your stories! I did not have any amniotic fluid with my last two deliveries; my first two were uneventful. My third child was healthy but the youngest has had numerous health issues - including having a diagnosis of homozygous MTHFR and Protein C deficiency. Now we are expecting our first grandchild and my daughter (who is expecting in Sept) has the diagnosis of homozygous MTHFR but not Protein C. I am wondering if it is possible that my MTFHR caused the lack of amniotic fluid with my last two pregnancies. Another question - is the DVT a condition resulting from the MTHFR or a actual blood disorder? I always thought it was a condition as a result of something causing/allowing the blood to clot...
Thank you all, again...I am diligently searching for answers to help protect my unborn granddaughter - we will be meeting with a genetic counselor next month and my daughter saw one last month.
I am 18 weeks pregnant this will be my first pregnancy I am 22 and i just found out that I have MTHFR defect as well and I am Protein S deficient I am so scared after reading all these stories, there has to be a few that didn't know until later and still had a normal pregnancy, right?
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