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Update on Jeremy.....

by ArmyPrincess819, Aug 04, 2009 04:38PM
So Jeremy had jaundice and was on the billy lights for 2 days. They allowed us to take him home sunday the 26th as long as we got him in to see our pediatrician right away. We have a very thorough dr who while checking his jaundice levels did a whole round of blood work. Jeremy has a a,b.o incompatability which means he is unable to make new red blood cells. He looks perfectly healthy but his labs are not. My dr called me last night to tell me he called the hematologist he works with in boston and we have an app on thurs. Jeremy will have to be on a therapeutic medicine and may need a blood transfusion. Jeremy's pediatrician is quite concerned given Jeremy's age. So my nightmare has not ended. I'm a mess honestly and I just don't know what to think anymore! I thought once he was here and in my arms my worries would subside and then it would just be typical mommy worries but nope of course not! Please keep Jeremy in your thoughts and hope that this is just a minor obstacle and he will be fine! Thanks.....

AP
Member Comments (12)

by Tasia32, Aug 04, 2009 05:11PM
Oh no, I'm so sorry things have been just difficult for you. I hope he gets good news soon!

by natalie910, Aug 04, 2009 06:06PM
I am so sorry. I had no idea any of this was happening. I will keep you and Jeremy as well as your family in my prayers. I hope things go well with the Dr and you can start to relax. ((hugs)) You've been through so much, it really makes me so sad you're going through this.

by ArmyPrincess819, Aug 04, 2009 06:54PM
Tasia- Thanks my friend you are such a support system for me!!!

Natalie- I'm crying reading your reply yes you are right my dh and myself have been through so much my whole pg and now our nerves are on over drive. All I can do is just cry. This lil guy has been poked and proded so much my heart breaks. Thank you so much for keeping my lil man in your prayers....
Hugs,
AP

by DMarie919, Aug 04, 2009 07:01PM
Aw...I am so sorry to hear this!  But hopefully since they found it out so early they can get him the treatment he needs....I'm sure it is hard to watch your lil guy go through this
:(  My prayers are with you and your family......

by GRose, Aug 04, 2009 08:52PM
I am so sorry AP, I cant imagine how much you must be freaking out right now. Poor little Jeremy. He has proven to be a strong little man this far and I have faith that he will continue to be. I will keep Jeremy and the rest of your family in my prayers.
Gina

by Blackmetalrose, Aug 05, 2009 11:24AM
I'm so sorry to hear about your little man, Him and your family are in my thought.  Keep your head held high and everything will work out in the end.  It's the obsticals that we have to over come to really apprecate the good things in life.  

*Hugs*
Crystal

by Stormy16, Aug 05, 2009 04:15PM
To: AP
Im so sorry and will pray that everything works out.... i know how you feel worrying tho. This is my first baby and right after i had him they took him to the NICU cuz they were concerned about his breathing. He would breath way too fast for a newborn, then normal...then fast again. They did blood work, xray, found nothing wrong. But it hasnt gona away and the dr wants to see him 3 times a wk. It makes me so nervous and the first wk i had him home i could hardly eat or sleep. I have never worried about anything more. You  are in my prayers!!!

by ArmyPrincess819, Aug 05, 2009 05:56PM
Grose- Thank you so much! It is so hard I'm trying to keep it together but it's not easy!!!!

Blackmetal- You are right it is an obastacle to overcome I'm just wondering when the obstacles will stay out of my marriage and my kids and focus on other areas of my life. Thanks for all your support!!!

Stormy- My 3rd was in the niccu for a month it was a nightmare. With Jeremy we almost couldn't take him home due to his jaundice and now that has subsided and now we have been dealt this issue. I'm really really scared...His app is tomorrow with the hematologist. We shall see what they say!!!! Thanks for posting up such support!!!!

Thanks ladies you all are the best and your kindness is just so appreciated! I'm so grateful to all of you!!!!
Hugs,
AP

by Crysi, Aug 06, 2009 10:50AM
I hope everything goes well today. I am thinking of you and your lil man.  

by IsabelleCanada, Aug 06, 2009 05:36PM
I'm so sad to hear of Jeremy's condition... poor little guy, it must be hell to watch him get poked and stuff... you're brave and I know that you will be his rock and see him through all this... I just know in my heart of hearts that one day, you'll look back on this daunting time as a distant memory of the obstacles you faces as a family... and that everything will be alright for you and especially for your adorable little Jeremy

I will keep him in my prayers... be strong, you're the heart of the family! They need you!

by ArmyPrincess819, Aug 08, 2009 09:25AM
Thanks ladies for all your support. I'm losing my strength and I'm slowly getting run down. I'm exhausted Jeremy doesn't feel good so at times he is fussier than usual and so all you can do is just hold him and help him through it! Hopefully things will turn around since he had the transfusion! Thanks again!

AP

by Sasha80, Aug 09, 2009 11:14AM
AP--Sorry...I haven't been on in a few days.  Keeping Jeremy and the rest of the family in my thoughts. He's a tough lil man.  Stay strong!
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