Aa
Horrible news..Prayers needed.
This morning I woke up and Dameon wasn't using his right arm, I figured he may have slept on it wrong, and I gave him an hour to move it before I called the ped., he didn't move it, so I went ahead and called around 10:15, they told me bring him in around 12:45, so I said okay, I will, and after a few minutes I realized he is in some HORRIBLE pain, and I called back and told them, they had me bring him right in. His ped. thought it was dislocated, and decided to do an x-ray, after that was done it showed he had a fractured arm, OBVIOUSLY alarmed, and panicked, I called DH and he came over with us, the ped. decided to do a full body x-ray to make sure there were no more broken bones, and as it turns out, there were 8 in total!!!!! His arm, both of his legs below the knee, three in one rib cage, and two in the other, all in different stages of healing, so they all didn't happen at one time, I go to a specialist tomorrow to find out what's going on with him. I automatically assumed that someone was harming my baby, and so did the ped. obviously, so they called child protective services. I'm obviously so upset, not only do I have to deal with 8 broken bones in my son, but CPS too, they were very nice, they do NOT think we're abusing our child, but they're taking precaution. DH and I can't have Dameon alone until they find out what's going on with him (hopefully tomorrow) so he's staying with my sister. I've told my doctor OVER AND OVER he acts like it hurts him when you lift up his legs to change him, or pick him up under his armpits, and he said he thought it was nothing, and it turns out it was broken bones hurting him! After doing some online research Temporary Brittle Bone Disease EXACTLY fits Dameon, he has a grey tint to the whites of his eyes, bow-legs, multiple unexplained fractures. FORTUNATELY, the child grows out of this between 6-12 months, so I'm praying to god my son will heal, and get the proper treatment, and is back with me and DH quickly, because god knows I would NEVER harm my son, ever. Please pray for us!!
Well apparently he had broken bones before the vaccines, I'm not sure, his ped. (well, his old ped.) held some of his records from me, has lied on some of his records with the excuse that "he doesn't have a very good memory", and not sent all the information to specialists that they needed, so god knows what the truth is anymore!
I am so sorry to hear this terrible news... Dameon and your entire family will be in my prayers...
About the diagnosis, it could also be a terrible reaction to the 2-month vaccines... you can watch "Vaccine Nation" on youtube and you'll see that some babies even die or have all the same symptomes as "Shaken baby syndrome" but it's the vaccines that cause the broken bones and or blood in the brain... scary stuff
hang in there, you're in our thoughts
good luck
About the diagnosis, it could also be a terrible reaction to the 2-month vaccines... you can watch "Vaccine Nation" on youtube and you'll see that some babies even die or have all the same symptomes as "Shaken baby syndrome" but it's the vaccines that cause the broken bones and or blood in the brain... scary stuff
hang in there, you're in our thoughts
good luck
The system seems to work that way, and The Babies that really need the help they are completely ignored and left in the home where they live in terror every day!! It angers me very much. You are a very good mom he is lucky to have you, and obviously they can see that you are not harming your child, what do they think you are breaking your back to find a cure for or a reason for that matter? the good of your own health not Dameons?? Everything has a funny way of working out in the end and you are in my thoughts and prayers. Hugs to little Dameon
Crystal
Crystal
This is just a horrible situation that Dameon and you and your family shouldn't have to be gong through. This is just ridiculous, I will continue to pray for you guys and Dameon.
Blackmetalrose - Thank you, I am more angered by the fact that everyone is more concerned about pointing their fingers at me and DH than they are finding out what's wrong with Dameon, and in the end it's only hurting him, and making him suffer longer.
*hugs* words can't really express how i feel for you so i'll just settle with a hug, i hope everything works out, I hope your little boy feels better soon!
I am getting an attorney, they have to keep adjurning my court dates until the results come back, so I don't get Dameon until the results come back, and even then the results are only 85% accurate, and the doctor that's testing him for OI said that mild cases (which he believes Dameon has) are VERY difficult to detect, and that he had one girl test her son 5 times before it even showed. I just can't go that long without my son, it's absolutely killing me. Thank you ladies.
I agree with the others, hire a lawyer. This is so sad and ridiculous. They shouldn't keep a baby from his mother and father for this long when all signs are pointing to osteogenesis imperfecta. I am so sorry. This has got to be so hard on you. Like the others, I am here for you and I will keep you in my thoughts and prayers. This is honestly making me sick and a little teary. I am very sorry Kim. Please continue to keep us posted and look into an attorney. I pray you get your little baby back into your arms (for good) soon.
I am SO sorry for what you are going through! I wish there was something we could all do to help! I will definitely continue to keep you guys in my prayers and really appreciate you keeping us posted. Is it normal for the test to take that long? Is there maybe another lab they could send it to that would make this go quicker? Maybe Dani is right and you need a lawyer. At this point if several dr's all think its the same thing then doesn't that rule out the abuse - I just don't understand why they won't let you have your son back! It's bad enough that he has this issue and that you are all having to deal with that but to not let you have control of his care! It's outrageous! You are in my prayers girl!!
I think about you all the time and just can't imagine how hard this all must be. Can you hire a lawyer??? ....Always in my prayers...
oh my gosh, Kim, that is so awful to keep you from your child, and him from you. Really, at this point, there is just no reason!!!
Are type 1/type 4 OI very different?? Which is less serious? I think of you and your family often and was just wondering if i should pray for a specific outcome.
((hugs))
Are type 1/type 4 OI very different?? Which is less serious? I think of you and your family often and was just wondering if i should pray for a specific outcome.
((hugs))
I went to Syracuse today, they looked him over and told me he has symptoms of type 1 and type 4 osteogenesis imperfecta, so they ordered a blood test that will be done next week, but it takes 6-8 weeks to get the results back, and until then I can't even be with my son overnight, only 7-10, I don't know what else to do.
Oh gosh, I am sorry that life is throwing you this lemon right now! I sure hope it all gets better very soon. I'm so glad that at least you know what the problem has been and know how to deal with it like you said and cause the baby more fractures...I hate the sound of the whole thing for you!! Please keep us updated and lots of prayers your way!
Girl! Bless ya'll's hearts (yes, I'm from the South)! I'm so glad that ya'll have found ways to care for him without causing further pain! I can't wait for ya'll to get the answers that you so desperately need! I can't imagine how it must feel to have to leave your baby like that - even if it is overnight. Hang in there girl! And please please keep us posted. We will be praying for you and your little guy and DH!!
he's doing great now, he's been so much happier now that we've been handling him with EXTREME caution. And since we've been extremely careful with him, he hasn't acted like he's in too much pain or been bruising. But like I said, obviously he was always in pain, and always crying because all of us handled him like a normal baby, not knowing he had broken bones, now that we know, and haven't been holding him like a normal baby, and just scooping him up under his back, his ribs have had time to heal instead of us refracturing him without knowing, and he's been SO much less fussy. Thank god, hopefully wednesday we get some answers.
how's he been doing.. has he had any new bruises being at your sisters? i hope all is well i cannot imagine how difficult this must be
I traveled 8 hours to NYC for a doctor to tell me that osteogenesis imperfecta was a possibility but she only treated, she didn't diagnose, after I had asked her on the phone to do TESTS to see if that's what he had and she said she would. Dameon has a skin graph scheduled for next wednesday, hopefully some answers will come out. I'm completely depressed, I have "visitation" of Dameon from 7am-10pm, that's IT. He's staying with my sister so I know he's in good hands, but it's killing me.
Thinking of you all hun. Everything will come right in the end. Praying for you sweet-if it's anything like this country they look into all the wrong cases-the ones they really need to look into get ignored!
Take care of urself cos when u all eventually do go home u will need your strength!
xx Freya xx
Take care of urself cos when u all eventually do go home u will need your strength!
xx Freya xx
Kim - I am in total agreement with the ladies above! Find another dr asap! Which I know you are doing - please keep us posted!! I feel so bad for you and your little guy and I pray that he is not in pain bc of them making him wait so long to be seen! Again - please keep us posted and I will keep you, DH, and Dameon in my prayers!
I have not heard of this and I can't even imagine the craziness you are feeling. I am soooo sorry and hope for a quick fix for all of you! God bless your little guy and you and your husband!!
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