Pregnancy: Oct 2009 Babies Community
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This patient support community is for discussions relating to pregnancy, childbirth and maternity for babies due or born in October 2009.

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update

hi all so i'm reaching the big week 18 on monday so excited but nervous at the same time i mean i may only have a little over a week left with my baby if things turn bad and i pray to god that everything is ok, so this week i felt movements and its the most amazing feeling i have ever felt and the only way i could explain it to my friends is it's like being in a lift and when the lift stops and your stomach jumps thats what it feels like and i love it...

so i go for my 19 week scan in 9 days and one part of me is looking forward to seeing my growing baby but the other is so scared of the bad news that i might get, but that will be the day i either get (You have a healthly baby) or (sorry your baby looks like it might have Trisomy 13 or 18) they are the words i dont wanna hear because i know if i hear them i'll have to make the hardest dicison i'll ever have to make in my life and that'll be to terminate my pregnancy.... i want this baby so much and if i hear the words heathly baby i think ill cry it'll be the happiest moment in my life

i should shut up now
but will let you all know how it goes at my 19 week scan
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8 Comments Post a Comment
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561393_tn?1320966415
i know you don't know me.. but don't worry i did blood and my nt reading sayed that the chance of my unborn child would have some kind of chromosome problem... after weeks and weeks of crying b/c i knew if something was wrong i would have to termanate and i did do the amnio and nothing was frond.. my doc want me to do an echo but i'm not doing it i don't want anymore test done on my little one.... mericles do happen and sometimes the doctors don't know what they are talking about... good luck
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376739_tn?1317669990
I'm really sorry!

What are Trisomy 13 and 18? Is one of those Tay Sach's? How do they tell if your baby has them via sonogram? Sorry for all the questions but I want to understand the situation better and let you vent about it. *HUGS*
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Avatar_f_tn
i found out at my 13 week scan that i have an increase risk of 1:307 of trisomy 13 and 18 due to my hormone levels being low in my blood test

Trisomy 18 and Trisomy 13 are the only two live born trisomies apart from Down�s syndrome. These trisomy disorders tend to have much more severe clinical manifestations than trisomy 21, and only rarely do affected infants survive to one year of life. Mean survival time ( MST) forTrisomy 18 is 6 days, and MST for trisomy 13 is 8.5 days. Multiple abnormalities exist in a fetus with a trisomy disorder, but there is no single anomaly that is pathognomonic for a given trisomy. Rather, there exists a characteristic constellation of clinical findings that suggest a specific diagnosis. All autosomal trisomies can present with cardiac defects, but they are more severe in trisomy 13 and 18 than in trisomy 21.

yeah so it's not too go and i dont believ in bringing a suffering baby into the world so if my baby where to have this i have choosen to terminate its just not fair
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218870_tn?1240259255
sorry, I responded to the other post thinking it was this one saying nine days, so what, your exam is the 24th?  my thoughts and prayers are with you.  Please let us know how it turns out.  
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744501_tn?1253838854
My little cousin was born with Trisomy 13 and lived a wonderful 6 weeks with his mom and dad.  You never know until the time comes what God can do.  Please do not terminate this baby no matter what the results.  You have to give it a chance.  THe doctors told my friend her child would be born with severe club feet and when she came out she was perfect.  Please don't termintate.  Your baby deserves a chance.  I am sorry I am being aggressive, but I am very pro-life and I know God can do great things.
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218870_tn?1240259255
Key words "I am very pro-life"  that is you!! Keirajane said very clearly she doesnt believe in bringing a baby into the world to suffer.  We need to respect each others beliefs.  You do what is right for you and Keirajane will do what is rght for her.  This just is not fair to give her grief at this time in her life!  I am not saying you are wrong in your beliefs but you become wrong when you  tell someone to go against what they believe in to adhere to your beliefs.  That is a great way to have someone feel guilt for the rest of their life and that isnt right either.  We need to be here to support eachother in any decision that we make not to judge or try to change their mind.  Keirajane asked for support, not opinions!  If she asks for our opinions then we need to give them to her, but until then we need to be here to support her in her decisions. Hopefully everything will turn out ok and a decision like this will not have to be made.
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Avatar_f_tn
no one knows how i feel or what you would do until you have been in my situation, it's not gonna be easy for me and i'm not taking the easy way out by choosing to terminate this pregnancy if things are bad.. i still have to make the dicision and kill my own baby and to make things worse i have to give birth and call that easy i think not... no of u have the right to judge me on this until you have been though it yourself. and for those who are do me a favor go and research trisomy 13 and 18 have a look at some pictures and see what ya think about it then!!, have a look at some of the birth defects..

i dont care about the amount of pain i'm gonna have to go through thats ok... i dont what my baby to feel that pain and thats my choice no child so have to feel that pain..

sorry if this comes across rude but i just dont think anyone has the right to judge me over this.
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745101_tn?1293042414
Hi KeiraJane-

This is a terrible position to be in, and I cannot imagine your pain.  Going into the 20 week appointment, so many of us are unaware of what can really go wrong, probably for the better.  And then others of us are blindsided with our worst fears, like yourself.  I wish I could articulate how deeply I feel for your unbelievable position.

After seeing this, I did do some research on Trisomy 13 and 18, as you said.  It does sound like some parents are very happy they carried their babies to term.  Some lived with their children a short time, while others got to love their babies for years and even still.  Please don't take any of this as judgment: that's not in my heart at all.  Kjbutcher says rightly that you didn't come here asking for our opinions, and I'm not in a position to give one.  If anything, I'm only hoping you consider joining a community of families in a similar position as you or further along in the journey that can give you informed support as you make this very important emotional, spiritual and medical decision.

At a minimum, I think these couples and families can be another dialog in your ear besides your doctor's medical one, which is only a small factor of what it sounds like you are feeling.  Maybe you already have support like this, and if you do I am so glad.  You don't have to go through this alone, and I hope if you are reading anything in this post, that you feel the heart of a girl who is breaking for your position and wants to encourage you to explore all your options (if you haven't already).

Please keep in touch with how you're doing as you feel up to it.

All the best,
KF

http://www.livingwithtrisomy13.org/
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