Pulmonary Hypertension Expert Forum
Repost
About This Forum:

Pulmonary hypertension is a condition associated with high blood pressure in the arteries that connect your heart with your lungs. It is a serious condition for which there are many emerging treatments but no definite cure. In this disease, the blood vessels that carry oxygen-poor blood from your heart to your lungs become hard and narrow, which causes your heart to work harder to pump the blood. This forum is a place to ask questions about Pulmonary Hypertension. Some examples are: What caused me to get pulmonary hypertension? How is pulmonary hypertension diagnosed? What treatment options are available?

IMPORTANT!! If you have a question that requires immediate medical attention, or if you think you may have an emergency situation, please call your doctor or 911 IMMEDIATELY!

Font Size:
A
A
A
Background:
Blank
Blank
Blank
This expert forum is not accepting new questions. Please post your question in one of our medical support communities.
Blank Blank

Repost

9 year old with history of Familial PAH in one parent has reported mild TR between 30-35 mm Hg and 35-37mm Hg respectively in 2 successive Echos over a period of 6 months.
The pediatric cardiologist wrote it down as "Mild PAH" with no changes in heart structure.

What precautions should one take to initiate lowering of pressures and/or prevent progression to PAH?

Thanks.
1884349_tn?1353818598
Hello and welcome to the forum.

My apologies for this delayed response.

First, the PA pressures by the echo are all but meaningless.  I simply can not comment on them since they are frequently wrong and not truly representative of actual PA pressures.  I would strongly consider having your child evaluated by a national expert in pediatric PAH.  There is a very good chance that your child is ok but if you have been told that you have a familial form of PAH, I would certainly not trust anybody but a PH expert.  And, if you tell me that the current doc you are seeing "is an expert" I woudl consider getting a 2nd opinion.

Best,

Dr. Rich
3 Comments
Blank
Avatar_n_tn
I understand that the results at best are only indicative.

However, my question essentially is .... is there anything in medicine or nutrition ..... or any kind of lifestyle known to mankind to prevent progression to PAH in adult life?
(for eg.: Keeping L-citrulline levels high might prevent the disease .... so a research study sought to investigate)
Blank
1884349_tn?1353818598
There is nothing "proven" to prevent or clearly slow the progression of PAH.  Having said that, this very may be an example of allowing the cart to get ahead of the horse.  First, you need to see if there is even anything to be concerned about.  If PAH is present, modern day therapies have improved somewhat and quality and quantity of life have likewise improved as a result.

But again, really not clear that there is even anything going on at this stage.  Please feel free to keep me posted if you learn new information.

Best,

Dr. Rich
Blank
This Forum's Experts
1884349_tn?1353818598
Jonathan D. Rich, MDBlank
Northwestern Memorial Hospital
Chicago, IL
MedHelp Health Answers
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank