Rare Diseases Community
Been tested for everything!!!!!
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This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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Been tested for everything!!!!!

Im 33, and been sick for about 4 months now. I passed out and thought maybe I had the flu. I didnt get any better so I went to the Dr and he tested my BP/Sugar and everything inbetween. My IgG came back 3.9 (im being told that normal is 0.9) He said it showed that I was exposed to Mono in the past but I dont actually HAVE Mono and left it at that. He said it COULD be a Mono flare-up and would last a week or 2. 4 MONTHS LATER I am now seeing a new Dr. Lost 35 LBS in 9 months 9without trying), faint and woozy, muscle cramps and pain, body tremors, nausea in the mornings (usually) and no Im covered in Petechiae and Purpura on my arms and parts of my legs. I had all the labs I could think of done as of last week: Sugar, ANA (Lupus, MS (my mother has) and other Autoimmune diseases), Lyme Disease, STD testing, Pregnancy, Aldolase (muscle/liver damage), thyroid, liver, kidneys, CBC, Im sure I can name alot more. TEHY ALL CAME BACK NEGATIVE. I dont understand. Due to the woozy spells and felling funny and also loss of muscle control or pain/weakness I am not driving right now and it's been a couple months. Im afraid of gettin into an accident or something. What else is there to test for??? Someone please help me out. I am so frustrated. Dr gave me diagnosis of Myalsia for now because he cant find anything else.
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selmaS
Allentown, PA