Rare Diseases Community
CIPA Disease
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CIPA Disease

I am looking for help for two little kids in Morocco. They have CIPA. It is unheard of in Morocco. They lost their toes and fingers. They have no medical help. Who can i find help for them here in the USA?

Thank you
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i have CIPA to i live in the netherlands. i'm almost 22 year
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selmaS
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