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Dandy Walker Malformation in UK

by croissant2luneuk, Oct 23, 2008 08:39AM
Mum of a 4 years old boy diagnosed recently with Dandy Walker Malformation. Seeking more informations regarding the condition from parents and sufferers themselves.

Would be great to hear from people in the UK or ideally from Surrey to share experiences. Would be great to hear from french people too as we are french nationals and this condition seems to be quite rare either here in the UK or France.

My son can speak, run and walk. He has basically one year developmental delay, poor gross and fine motor control, social communication problem... and although his case is not as severe as some others he needs your help. Thanks for your feedbacks
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