Dysautonomia docs don't seem to care about me....

I've seen specialists 2x now for my autonomic nervous system dysfunction that was dx'd after a 4 day hospital stay last Sept. However, I cannot take the 2 "go-to" meds for this condition - now I am basically being ignored by them. I've called, sent in my BP charts as asked, and I've heard nothing. Should I go elsewhere for help? Since so many docs never even hear of this disorder, I am pretty scared to start doc shopping to find someone that will listen and actually care than my life has been taken from me at 49. Advice?
Thanks, Ara

[selmaS]

  This is not a rare condition there r more with it then u know...try the http://www.medhelp.org/forums/Dysautonomia-Autonomic-Dysfunction/show/266?controller=forums&action=show&id=266&camp=msc

Here on Medhelp there r others with this that can offer insight,