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Dysautonomia docs don't seem to care about me....
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Dysautonomia docs don't seem to care about me....

I've seen specialists 2x now for my autonomic nervous system dysfunction that was dx'd after a 4 day hospital stay last Sept. However, I cannot take the 2 "go-to" meds for this condition - now I am basically being ignored by them. I've called, sent in my BP charts as asked, and I've heard nothing. Should I go elsewhere for help? Since so many docs never even hear of this disorder, I am pretty scared to start doc shopping to find someone that will listen and actually care than my life has been taken from me at 49. Advice?
Thanks, Ara
620923 tn?1452919248

  This is not a rare condition there r more with it then u know...try the http://www.medhelp.org/forums/Dysautonomia-Autonomic-Dysfunction/show/266?controller=forums&action=show&id=266&camp=msc

Here on Medhelp there r others with this that can offer insight,
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