Rare Diseases Community
Dysautonomia??
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Dysautonomia??

Hello. I am really hoping someone or a doctor can provide feedback. I am experiencing some terrifying things and am at a loss. I have had several episodes of what my cardio would call inappropriate sinus tachycardia. I went to ER for a pulse of 150 that wouldn't come down. They sent me home to take me Toprolol ER. I am not on Lopressor 25 mg one and a half times a day, seems to be helping with the heart racing and pounding. But I am getting lot's of other symptoms that is really making me think I have dysautonomia. I have constant fatigue, times were it feels like I have veritigo, I have an intollerance to heat to where I cannot even take warm showers anymore. I am not crazy, I had 2 pyschologist tell me they can find no reason for my anxiety, I have had 4 cardios say my heart is just fine and cannot explain the tacycardia or palpatations (pvc's, pacs). Does this sound like dysautonomia to anyone? I have attached one of my older posts below. Any feedback would be greatly appeciated. Thanks!

Older Post:
I would really like a doctor to respond to this question. All over the internet you will find thousands of posts from people posing questions with the same symptoms. What on earth is causing this heart pounding?? If you read my previous posts over the past 2 years, you will find out that I had my first panic attack after trying marijuana for the first time, I was dumb, I know this, but now I am just seeking help and answers for all the others out there like me. Ever since that first panic attack, where I thought my heart was going to explode, I have had constant heart palptations and repeart panic attacks, and just overall high anxiety. However, with me, most of my anxiety starts with the heart pounding. The best way I could describe it to someone who has never had it before is this. If you lie down and get comfortable, and get up to fast, there is a brief moment where you can feel the heart beat very forcefully, and feel lightheaded, almost faintish. This is the type of heart pounding I feel constantly. I have seen 4 cardiologists, ER doctors, primary care physicians, electrophysiologists, it's insane. I feel insane. All heart tests came back normal, except IRBBB, which is benign anyways. I am currently on metoprolol 12.5mg twice a day to help with the heart pounding/anxiety. However, like those on SSRI's, still have the symptoms. From my knowledge and experience, I believe it is a combination of to much adrenaline, and or anxiety stimulating the adrenaline. I have seen multiple CBT's, counselors, and done yoga, P90X, everything I can think of, and yes, I eat healthy. It's sad so many of us are suffering with so little answers. Perhaps there never will be an answer, and SSRI's and beta blockers will continue to be our temporary assistant with these symptoms. I really emplore any doctors to give their ideas or input, as well as those suffering. Thanks. .
2 Comments Post a Comment
Blank
620923_tn?1416285879

  Hi...have u tried talking to others with a similar issue,,,,we do have a forum for  this condition as it is not as rare as one may think.

http://www.medhelp.org/forums/show/266?camp=msc

The members may have some insight to share with u that may help.
Blank
1933354_tn?1323366434
Thanks, I'll post this there!
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Rare Diseases Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Rare Diseases Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
995833_tn?1375604252
Blank
maatson
Other