For the past three years I've been a Step Mom to an 8 year old boy with Prader Willi syndrome. He's a really sweet little boy and I'm glad to have him in my life but I still have a lot to learn. One thing I'm wondering is are there any other parents out there familiar with PWS and have seen the habitual shaking of the head from side to side as if saying "no"? It seems to me that he sort of self stimulates and gets himself dizzy. He does it while walking, eating, in class, watching tv...just about anytime really. Does any body have any experience with this?
How are you? Prader-Willi syndrome is a congenital disease caused by a gene missing on part of chromosome 15. It involves obesity, decreased muscle tone, decreased mental capacity, and sex glands that produce little or no hormones. The habitual shaking of the head may be associated with the symptoms mentioned but if it persists and dizziness is present, you may need to have this evaluated. These links may also be helpful:
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