Rare Diseases Community
Head shaking PWS
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Head shaking PWS

For the past three years I've been a Step Mom to an 8 year old boy with Prader Willi syndrome. He's a really sweet little boy and I'm glad to have him in my life but I still have a lot to learn. One thing I'm wondering is are there any other parents out there familiar with PWS and have seen the habitual shaking of the head from side to side as if saying "no"? It seems to me that he sort of self stimulates and gets himself dizzy. He does it while walking, eating, in class, watching tv...just about anytime really. Does any body have any experience with this?
Avatar_dr_f_tn
Hi,
How are you? Prader-Willi syndrome is a congenital disease caused by a gene missing on part of chromosome 15. It involves obesity, decreased muscle tone, decreased mental capacity, and sex glands that produce little or no hormones. The habitual shaking of the head may be associated with the symptoms mentioned but if it persists and dizziness is present, you may need to have this evaluated. These links may also be helpful:
http://www.prader-willi.org/
http://www.pwsausa.org/

Take care and regards.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Rare Diseases Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
Top Rare Diseases Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA