Liddle Syndrome

[foreverinfaith60]

I have Liddle Syndrome,and it is a very rare kidney disease. Very few Doctors know about it. It is passed through families and can be deadly, as I found out a month ago. I would like to get Docs and people to know about this. Kidney Docs usually know but I found out that most MD's don't have a clue.The hospital where I was had to Google it to find out about what I was telling them  and then they had to transfer me to a larger hospital to save my life.

[Rowena Santos, MD]

Hi,
Welcome to the forum! How are you? Indeed, Liddle Syndrome is a rare condition and this post will definitely help others know about this syndrome. Liddle syndrome is an autosomal dominant disorder which can be inherited. Hypertension is observed during infancy. It involves abnormal kidney function and is treated with a combination of low sodium diet and potassium-sparing diuretic drugs. Take care and best regards.

[foreverinfaith60]

Thank you so much for this post. It seems that I found only one other person that has this and I haven't heard from her since I left her a post. I hope she is doing good. And I am so surprised to hear from a doctor! Again thank you, I hope more MD's check into this. I'm so thankful for you. I'm doing god now. I have to have my blood test every three weeks. I also have an ICD implant.Next week I should start chemo. Hope it doesn't deplete my potassium. When I went into seizures it was 2.3. I have confidence in my docs. Blessings to you.