Rare Diseases Community
My Niece Is Sick
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This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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My Niece Is Sick

I was so sad when my elder brother talked to us about little Ping. She is now about 6months old. She is suffering from an illness called SMA. (Spinal Muscular A??) I read up some articles that baby may not be able to stand, walk easily get choke etcs. And they may not even live pass year2. Why is this happening? Can someone explain is this a genetic factors? I am still not sure how a beautiful baby would suffer from this illness? Is it from the parents? Is there a way to help her?

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