Rare Diseases Community
No one can figure out whats wrong with me
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This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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No one can figure out whats wrong with me

Three years ago i had two Ladds procedures to correct my kinked intestines. The doctors said that would make my health problems disapear. Today i still have severe problems and they are getting worse. I feel like i am starving and im losing weight yet i cant eat. Everytime i eat i get nausea, vomiting, diareah, chills, severe pain in my lower left abdomen, chest pain and occasionaly difficulty breathing. i keep finding bruises all over my legs and chest and they dont seem to go away. I have seen many specialists and none can figure out what is wrong. they have tested me for celiac, and msg allergies and both are negative. i have had upper and lower endoscopies, many blood tests, and cat scans. Does anyone know what could be causing this?
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