Rare Diseases Community
Please help me identify my disease
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This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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Please help me identify my disease

Hi,
I'm a 23 year old women and I've suffered from an unknown illness for 5 years.
It started with erithema nodosum; inflamations on my lower legs. After this, I began having open wounds on my perineum and inside my mouth, and bacterial tonsilitis. Throughout the years, these symptoms have been occuring more often. I first has them seperately but now I have them all at the same time. At the moment, the symptoms come about once a month, when I am ill for a few days and then it goes away again.
I've had my blood examined, a lung photo taken and I've been tested for Behcet's syndrome. None of these tests have directed to a diagnosis. I've visited a dermatologist several times but he doesn't know what to do with me. I've taken antibiotics and Naproxen but this didn't help.
Can anyone please tell me what disease I have? I'm tired of being ill all the time and it stressed me out to know that something is wrong with me but that I can't do anything about it.
Thanks very much in advance for your reply.
995833_tn?1375604252
I would think of Crohn's disease, with your symptoms.
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selmaS
Allentown, PA