Aa
A
A
Close
Avatar universal
Porphyria?
My hubby has been diagnosed with porphyria and im just wondering if any one else has it and could explain a little. As i am not a doctor so reading google feels like im reading an unknown language. I obviously know the symptoms as they are not pretty. We dont have any doctors in this city who know much about it other then to test for it even then after weeks in the hospital doctors told him it was in his head till he seen a specialist.
Cancel
1 Answers
Page 1 of 1
Avatar universal
I guess my biggest question is what do i do when he has an attack. Because after a couple attacks er doctors just pump him full of fluid and send him home with morphine which is obviously doing nothing to help.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Rare Diseases Community Resources