RARE DISEASES COMMUNITY
Stomach pain+excess bile+ulcers

Stomach pain+excess bile+ulcers

I am a teenage female. I have been having severe sharp pains in my stomach for about 2 years. I am currently taking Nexium, Levbid, Carafate, Alesse (for hormone therapy, my pain always worsens with my period). My symptoms are pain, fatigue, headaches, loss of appetite, weight loss, and nausea. I am currently seeing a pediactric GI. I have had A LOT of blood work (that always comes back normal), 4 endoscopies, 1 colonoscopy, the barium xray, and a bowel emptying scan (radiology) within the last year. My first endoscopy showed severe linear ulcers in my stomach and small intestine, by my second and third scopes, they were gone (thanks to the Carafate) but I had suspicious and "old" looking tissue. My colonoscopy was completely normal. My fourth endoscopy was just this week, my ulcers are back, and I have a lot of bile in my stomach still.  My GI doctor says she has never seen anything like my case and neither have several of her coleages. At this point I just really want a diagnosis, any ideas?
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Go to this site and look up bile reflux

www.mayoclinic.com

This names most all of your symptoms. Hope this helps. Keep me informed as to how you are doing.   RJ
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