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dercums disease...... how many of you have this on here?
i am still pretty new to medhelp. and i have Dercums Disease. so i was wondering how many of you on here do actually have it.... or think you have it. i was diagnosed with Dercums Disease feb. 13th 2009. it was a happy and sad day for me. happy that i finally had a diagnosis. but sad that i had it. i have been sick since i was 5 or 6 years old with so many many issues. so turning 28 and almost dying and then finding dercums disease on line and taking it all to my dr. and getting diagnosed was a lot to take in for me. but i have mad a lot of friends on 2 support groups for it. and on facebook. glad we are getting the word out there more and more. if you have Dercums and would like to be my friend on here. just ask. hope to hear from people who have DD very soon
There are studies currently proposing several theories of the causes which include inflammation of the adipose tissue, nervous system malfunction and endocrine malfunction. Gluten allergy and a lack of specific gut enzymes are a possible cause. Prevention through a gluten free diet and adding DPP-4 enzym supplements show calming and even decline of the painful symptoms.
Dear fellow Dercum's disease patients, Here is how I found my healing solution to Dercums disease:
At the age of 20 I developed minor Dercum's disease (not knowing it yet), around my 35th birthday I started getting a lot of experience with all known phenomena of the various symptoms from physical to psychological. On my 40th I got a period of great stress in my life and this was the trigger that Dercums disease in my body made a terrible ordeal.
After a year of visiting various skin specialists in scientific research hospitals globally, the conclusion was that the skin specialists had no idea what to do for the long term, nor what is the cause. The only conclusion is that my fatty tissue create's lipomas and is irritated and is lumpy. The terrible pain is not acknowledged and the cause is sought in the psyche.
After much consideration I decided to tackle it myself. At the cosmetic surgeon, I had 4 sessions (under a general light anesthetic) and over 60 of the most painful tumors (lipomas) were removed, this may make me saved my life because I was really desperate for the pain and turmoil that this caused.
Gradually I read on the internet by many people that the link was established between Dercums disease and a gluten intolerance and also a relationship between stress and Dercums. Stress causes adrenaline which on the long term creates cortisol which acts into the already weaker and irritated lipomas and fatty tissues.
Dercums appears to be an autoimmune disease, and the statement that a gluten-free diet for this may work to me seemed very plausible. Certainly if you look at the way the body tries to isolate the gluten in lipomas and how the fatty tissue is irritated by the reaction to gluten intolerance in the long term. This scenario gave me hope on an healing approach of Dercums Disease.
I started with a gluten-free diet and this appears to me an important part of the solution. Another part of the solution is in stress reduction, for this I use magnesium citrate combined with L-Tryptophan. This is an amino acid that provides stress reduction and thereby improves sleep. 'Eventually i found that DPP-4 enzymes helps to shrink and reduce existing lipomas and prevents new ones!'.
I also want to mention the prevention of cold on the body, do not go outside as temperature drops below freezing point in too thin a coat or pants, this is making the fatty tissue extra irritated.
The solutions i have found do require an approach to your lifestyle, although adding the DPP-4 enzymes is very easy, you must also have the will power for a gluten free diet. For me i found pretty alternatives to bread (gluten), and other allergens such as alcohol and cigarettes. Do not forget that there are also gluten in beer!
I know these practical and simple solutions will help other patients. There really is hope and that by insisting you can approach it and you get a nearly full quality life recovery. You can overcome 80% of the issues coming with dercums disease.
Sincerely, Dercums disease patient.
Dear fellow Dercum's disease patients, Here is how I found my healing solution to Dercums disease:
At the age of 20 I developed minor Dercum's disease (not knowing it yet), around my 35th birthday I started getting a lot of experience with all known phenomena of the various symptoms from physical to psychological. On my 40th I got a period of great stress in my life and this was the trigger that Dercums disease in my body made a terrible ordeal.
After a year of visiting various skin specialists in scientific research hospitals globally, the conclusion was that the skin specialists had no idea what to do for the long term, nor what is the cause. The only conclusion is that my fatty tissue create's lipomas and is irritated and is lumpy. The terrible pain is not acknowledged and the cause is sought in the psyche.
After much consideration I decided to tackle it myself. At the cosmetic surgeon, I had 4 sessions (under a general light anesthetic) and over 60 of the most painful tumors (lipomas) were removed, this may make me saved my life because I was really desperate for the pain and turmoil that this caused.
Gradually I read on the internet by many people that the link was established between Dercums disease and a gluten intolerance and also a relationship between stress and Dercums. Stress causes adrenaline which on the long term creates cortisol which acts into the already weaker and irritated lipomas and fatty tissues.
Dercums appears to be an autoimmune disease, and the statement that a gluten-free diet for this may work to me seemed very plausible. Certainly if you look at the way the body tries to isolate the gluten in lipomas and how the fatty tissue is irritated by the reaction to gluten intolerance in the long term. This scenario gave me hope on an healing approach of Dercums Disease.
I started with a gluten-free diet and this appears to me an important part of the solution. Another part of the solution is in stress reduction, for this I use magnesium citrate combined with L-Tryptophan. This is an amino acid that provides stress reduction and thereby improves sleep. 'Eventually i found that DPP-4 enzymes helps to shrink and reduce existing lipomas and prevents new ones!'.
I also want to mention the prevention of cold on the body, do not go outside as temperature drops below freezing point in too thin a coat or pants, this is making the fatty tissue extra irritated.
The solutions i have found do require an approach to your lifestyle, although adding the DPP-4 enzymes is very easy, you must also have the will power for a gluten free diet. For me i found pretty alternatives to bread (gluten), and other allergens such as alcohol and cigarettes. Do not forget that there are also gluten in beer!
I know these practical and simple solutions will help other patients. There really is hope and that by insisting you can approach it and you get a nearly full quality life recovery. You can overcome 80% of the issues coming with dercums disease.
Sincerely, Dercums disease patient.
1 Comments
I am getting lipomas all over my torso. I have a bad lower back and I have been rapping ice packs around my torso for the back problem. Perhaps I created the lipomas problem by doing that
I have Fibromyalia, and, for years I start to get these lipomas, no Dr. cauld tell me why I had so.. many, Until I saw a health program, they showed a man with the same condition I have. I spoke to my doctor and he send me to a dermatologist, And he said that, I have Dercum, Now I will be seeing a specialist soon.
I have been diagnosed with Dercums Stage III and Lipedema Stage II...
Recommend looking at www.fatdisorders.org ....there is a wealth of information and support on the website....this is a realtively new group but it is growing quickly as the medical professions are being exposed as to how to diagnose these rare adipose disorders.....
Recommend looking at www.fatdisorders.org ....there is a wealth of information and support on the website....this is a realtively new group but it is growing quickly as the medical professions are being exposed as to how to diagnose these rare adipose disorders.....
HI I HAVENT BEEN DX WITH ANYTYHING YET, AT FIRST I WAS UNDER INVESTIGATION FOR MS THEN WHEN I GOOGLED MY SYMPTOMS WICH INCLUDE EXCESSIVE WEIGHT GAIN, PAINFUL LIMPOMAS, SEVERE STIFFNESS ON WAKING IN THE MORNING WITH PERMINENT FATIGUE, CONFUSION, INTOLORENCE TO HEAT, PAIN IN MY FEET ALMOST LIKE IM WALKING ON SHARP OBJECTS, PROBLERMS SLEEPING I BEGAN TO WONDER UIF IT IS NOT THID DISEASE AS IT CAME UP WHEN I GOOGLED IT, AND SOME S7S ARE SIMILARN TO M.S.
I WOULD LOVE IT IF YOU COULD DESCRIBE TO ME IF THESE SOUND ANYTHING LIKE DERCUMS DISEASE, AND HOW IT IS TREATED
I WOULD LOVE IT IF YOU COULD DESCRIBE TO ME IF THESE SOUND ANYTHING LIKE DERCUMS DISEASE, AND HOW IT IS TREATED
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