dysfibrinogenemia

I have a 17 yr old with dysfibrinogenemia, a rare bleeding disorder. I was told yrs ago that she may never have children. How do I go about telling her without breaking her heart. I do not know much about the medications as of late and if this would help her if she wants children later in life.

[maatson]

Well, there are complications like bleeding,abortions and thrombosis during pregnancy.
Yet recent references quote circumventing these with medical treatment through pregnancy.
Fibrinogen was administered from the beginning of the pregnancy until delivery. In three out of four patients, abortions could be avoided by continuous administration of fibrinogen concentrate.
For the prophylaxis of thrombotic events, low-molecular heparin at a dosage of 40-60 IE/kg was administered postpartum for 14 days.
So it is possible but there are risks to be overcome.
Best wishes.