Rare Diseases Community
genetic cerebal cavernous malformations
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

genetic cerebal cavernous malformations

i was recently diagnosed genetic cereabal cavernous malformations that are very small but i had a previous small bleed after i had my children, they say surgery is to dangerous because of the location the one is in where i had the bleed. ive had the numb tingly feelings and headaches that come and go. they say the numbess and twitching will happen, but im scared the headaches means will have another bleed. i just want to live my life for me and my family. i feel like its olding me back. i dont go back for 6 months to have another mri
Related Discussions
620923_tn?1426651955
Hi Kasey...I know there r a few others in the chiari malformation forum that also have dealt with this issue as well...if u r interested in speaking with them let me know...one had surgery to remove hers....the other did not...neither had theirs bleed.

If u have a change in symptoms do let ur dr know ASAP.

"selma"
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Rare Diseases Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank