lissencephaly

[228]

my question isabout my little cookie,kassandra.she is a 19 year old suffering from a serious case of lissencephaly.her neurologist tells me it was caused by an infection during the first trimester of pregnancy.my question is how do i determine which type it is?i would like to learn as much as possible about this disease.she has lived much longer than expected but has recently getting progressively sicker is there any thing as a parent i can due to prolong her life?thank you so much

[Dr Santos]

Hi,
How is your daughter? Lissencephaly is a rare, gene-linked brain malformation characterized by the absence of normal folds in the cerebral cortex. Since the condition can not be reversed, supportive and good medical care may help prevent any problems.  Physical and occupational therapy are also indicated. If she is getting progressively sicker, talk to her doctor and discuss the management plan. Working together will help treat any complication. Take care and do keep us posted.

[kindi]

Hi,

I have a 17 months old boy with lissencephaly and my husband heard Linda Scotson speaking on radio that her technique's can help people with brian injury. In a world that is telling us that there is no cure or help for our children with lissencephaly, it's worthy trying. I went with my son last week to see Linda and I will try every technique which I was taught it might help. Visit Linda Scotson's website   www.scotsontechnique.com
or you can google "The Advance Scotson Technique".

regards

FGS.