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Reconstructive Surgery  (Expert Forum)
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granulomatous mastitis returns after double mastectomy with abdominal flap reconstruction
Answered by
Archibald S Miller III, MD,FACS - sternal reconstruction, augmentation, face lifts, breast reconstruction, liposuction/body contouring, abdominoplasty, Breast reduction risks, breast reduction, skin care
cosmetic and reconstructive surgery of tulsa Tulsa - OK
Questions in the Reconstructive Surgery Forum are being answered by Dr. Archibald Sanford Miller III, MD,FACS, the Associate Professor at the University of Oklahoma School of Medicine.

granulomatous mastitis returns after double mastectomy with abdominal flap reconstruction

by morethan1, Jul 09, 2009 09:13PM
My plastic surgeon has scheduled another surgery to remove a growing mass in my "flap" area where breast tissue used to be.  I had IGM and it looks as if it I still have it.  Skin is pink, mass is growing quickly, and peau d' orange is spreading to the entire breast area.  Should I be concerned that the granulomatous mastitis is spreading to the abdominal muscle that has replaced my breast tissue?  The plastic surgeon is removing the mass but I am concerned that it will recur again and again and don't know what kind of doctor to see.  Since I don't have "breasts", I can't really justify going to a breast surgeon....  It takes months to get in to see an infectious disease doctor and I really don't know if I should be concerned about a breast disease spreading to other organs.  I know IGM is rare and there are only a few cases out there - none of which categorize my situation.  My youngest is 15.  I am premenopausal and I don't have an autoimmune disorder.  Steroids and antibiotics did not help.  Lumpectomy did not help.  Now, it looks as if a double mastectomy also did not do the trick.  Am starting to believe I'm a freak of nature - if not, certainly not within 2 standard deviations of the norm!  Who can help?!

by Archibald S Miller III, MD,FACS, Jul 11, 2009 05:01PM
To: morethan1
It is possible to do a mastectomy and leave more than 5% of breast tissue. The tissue can be below the breast, and under the breast bone, and in the axilla. It is not that you are unusual. You do have a rare disease, but one must realize that the breast tissue is not completely removed with  a mastectomy. A curative procedure will require more surgery.

                        arch s miller ms md facs
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