This is obviously a significant and scary problem for you and your family. Since you have already seen a pulmonologist, one suggestion for you is to bring your son(s) to National Jewish Medical and Research Center, in Denver. Here the problem would be further evaluated. You would be given an action plan both for prevention and treatment of this problem. We see children like this all the time. If this is of interest, you may want to talk with your son’s doctor about a referral.