My five year old son was born with severe
refluxGastroesophageal reflux disease
Gastroesophageal reflux in infants
Hiatal hernia repair
Reflux nephropathy
Vesicoureteral reflux and was 6 weeks early. He has been chronically ill ever since. He catches "everything". When ever he gets a virus he will get
croup. He has been hospitalized with RSV and
croup. And has been to the hospital with
croup many times. The last time he needed 4
adrenalinAdrenalin
Catecholamines - blood masks to get him going. He has had
throatCancer - throat or larynx
Throat swab culture clearing and cough many times an hour for the past few months. I cannot seem to get a handle on this with his asthma meds (ventilin and flovent 125). He is also on Zantac which he says doesn't make him feel better although he says Maalox does. He has been checked for aspiration into his lungs which was negative. He has been checked by a pediatricd GI with a barium swallow and endoscope with biopsies, both of which showed nothing. We could not get him to do the ph probe. He gets the hiccups quite frequently and has on occasion told me that he feels like there is something in his throat. He has also told me that he has thrown up and swallowed it. The pediatric GI says he doesn't know what to do with him, maybe send him to a pulmologist. Maybe he has lung problems. (he has had a bit of pneumonia). We have air cleaners in our house, no pets and no smoking. He cannot do much of any kind of real active activity without coughing. He has had swollen sinus area (says his ENT) and blackish eyes. Sometimes he feels sick to his stomach. What should I do?
Cow's milk, milk products (cheese), and other foods like wheat (& other glutenous foods) can cause some people to have episodes of a high up type of gastric reflux.
The high up type of reflux, can cause breathing problems. This type of reflux is called LPR (Laryngeal Pharyngeal Reflux).
I also think a Pediatric Pulmonologist, and a pediatric ENT (Ear, Nose & Throat) specialist may be helpful to see.
You can telephone a LUNG LINE nurse, at 1-800-222-LUNG(5864), to ask for advice, and to check on either having your son seen at Nat'l Jewish, or, to get referrals to Allergists in your area, who have worked at Nat'l Jewish. Nat'l Jewish is a great medical center. We know, from our own experiences of being helped by them.
I wish you the best.
Concerned lady
<a href=http://cantbreathesuspectvcd.com>http://cantbreathesuspectvcd.com</a>
Blessings and good luck
In any case, we are diligently working on ruling out Cystic Fibrosis right now. He has many of the symptoms although his sweat tests have been negative.
Thank goodness for the internet, huh? It has been my place of refuge for all these symptoms. We probably know more than most pediatricians do now.
Take care and glad to hear your little one is under control! Cross your fingers for mine!