Need answers!!

[jennyP]

I am a 30 year old female, who started experiencing shortness of breath a few weeks ago.  I went to my fam. doctor and my 02 sats were between 91 and 93.  They ordered a chest xray, and a heart ultrasound( which came back fine) Chest x-ray showed inflammation of the lungs.  They started treating me for an infection and I was feeling better.  1 week later I went for my follow up appointment and 02 sats were still 90-93 and they started shuffling me around for more tests.  I had another chest xray and a CT scan of my lungs.  A pulmonologist saw me right away that day, and did pulmonary function tests, as well as reviewed my ct scan.  He seemed concerned that I was not eliminating all CO2 as I breathe out.  He suggested that it may be an alpha 1 antritrypsin deficiency that I have been tested for, and he also suggested a disease called LAM-which could someday require a lung transplant.  I am SOOOO stressed out.  I don't feel bad.  My oxygen sats were dropping to about 88 upon exertion during a test that they did at pulmonogy office,and they wanted me on oxygen therapy on any exertion which I am  not doing.  I did talk to another doctor of mine and he is willing to work with me on how much I need oxygen therapy.  I was just hoping for some feedback from some people who may have some experience with this stuff.  The pulmonologist scared me to death!!!