I have been experiencing occassional shortness of breath for over 10 years, which became exasperated in 2007. Hospitalized for 8 days. First dx: blood clot in the lung. 2nd dx: (after treament did not resolve the problem) adult onset asthma. Was on prednisone, advair, atrovent and proventil (nebulizer) and a pill I can't remember the name of for over a year. After constant wheezing and several PFT the Dr. concluded something was wrong but it was not asthma. He did a bloodtest to look for signs of sarcoidosis but they came back negative. He stopped looking for the problem. When my adrenal function tests became deficient and I started experiencing symptoms of adrenal insufficiency, I stopped all medications. Because of the fatigue and pain I went to see a Rheumatologist. I was diagnosed with RA and Fibro & prescribed Methotrexate & Folic Acid & a variety of pain pills that I couldn't tolerate because they either made me sleepy or nauseated. After 3 months, I stopped the MTX due to adversive side effects.
Two weeks ago I went to the ER for blood in the urine and hospital order abdonminal CT scan, which revealed patchy interstitial infiltrates? (The previous week I had what I thought was a cold/bronchitis and began taking Airborne, Mucinex,and Vit C. I felt bad but went to work every day.) My PCP said I didn't have the "garden variety" pneumonia and referred me to a pulmonary specialist. The specialist wouldn't directly answer my questions of: What are patchy interstitial infiltrates? and " What do they indicate?" He kept saying he didn't want to scare me but he ordered the following tests: special blood tests for conditions that can affext the kidneys and the lungs; gallium lung scan, chest x-ray (to look for fluid); another CT sacn and a lung biopsy. He did a PFT in the office which rvealed "restriction" but no "obstruction".
Can someone explain to me what "patchy interstitial infiltrates of the lower right lung" could suggest/indicate in light of all the other information? Are all these tests necessary? PS, I'm 51 y.o./non-smoker. I'm an Assistant Principal at a NYC Dept of Educ. elementary school.
Telling me, you don't want to scare me only concerns me more than I might need to be.
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