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I have chronic PEs. I've had them for 7 years and all of the doctors that I have spoken to are surprised that I am even alive. I am trying to find anybody who has had 5+ years of PEs and thus far - it seems pretty slim pickings - from what I have gathered thus far - nobody with PEs - (chronic) ever lives that long. I can probably answer any question that you may have regarding PEs and DVTs - my brother died from both. I have been hospitalized so many times that I have my own personal nurse with my healthcare provider - so, email me with any question that you may have - and I will try to provide a realistic answer vs. one which is glossed over by the doctors or those that have no idea what they are really talking about - and if you know of anybody who has 5+ years of chronic PEs and is still alive - I would appreciate you asking them to get in touch with me. ***@****