Sick since January. Diagnosed as Cryptogenic Organizing Pneumonia in March. Started on 60 mg prednisone, weaned down to 4 mg by Nov 1. Also 200 mg Imuran a day.
Symptoms returned & Chest X-ray shows patchy infiltrates. Increased prednisone to 10 mg a day. I'm reading Epler's book and doing research in hopes of getting my life back on track.
I take Crestor, drink wine & my liver enzymes are slightly abnormal. I've seen research indicating correlation to relapses. I also take Sertraline which Pneumotox says may cause COP. I haven't found much on COP & Imuran.
I'm seeing pulmonologist again Tuesday. Any advice or questions I should ask? Thanks
I am very sorry to learn of your travails. The category of interstitial lung diseases is large and complex, with numerous pathological presentations. In some cases the X-ray and CT imaging is characteristic enough for an experienced pulmonary expert to speculate with reasonable certainty on the specific type of this disease but, in the majority of circumstances, a lung biopsy is necessary to establish a firm diagnosis.
That your lung infiltrates have worsened with a reduction in prednisone is not uncommon, but worrisome.
The best advice that I can give is that you and your pulmonary specialist request a 2nd opinion from physicians at a medical center with physicians possessed of great understanding and experience with this group of diseases. Your physician could contact one of these places by phone. Here are two places with extensive experience.
University of California Medical Center in San Francisco Dr. Talmadge King
National Jewish Health in Denver, Colorado Dr. Kevin Brown.
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