I have had
muscularBecker's muscular dystrophy
Duchenne muscular dystrophy
Muscular dystrophy
Muscular dystrophy - resources/skeletal pain, fatigue and apparent neurological problems (
numbnessNumbness and tingling, weak legs/arms) for many years with no
clearClear by design
Clear eyes
Clear eyes acr
Clear eyes clr
Clear-atadine
Clear-atadine children's diagnosis. The neurological problems have worsened over the past year and a half.
Since Spring I have developed frequent shortness of
breathBreath alcohol test
Breath holding spell
Breath odor which occurs with exertion. For example, doing the dishes, walking across my house, bending over to retrieve an object. If I do not lie down when the shortness of
breathBreath alcohol test
Breath holding spell
Breath odor occurs it worsens and may progress to
hyperventilation. My doctors think I am having anxiety attacks. I don't think that I am. I have tried Klonopin which makes the breathing problems worse, they progress to hyperventilation more frequently.
I have normal Chest X-ray, and blood gas test. CT scan showed no pulmonary embolism. Nuclear stress test was normal.
I had a Pulmonary Function Test in which results got worse post-bronchodilator on the spirometry portion. The test showed the FCV with 6% improvement, but all other values dropping -29 to -71%. Pre bronchodilator tests were normal. I saw a pulmonary specialist who told me my lungs were sensitive but there was nothing wrong over all. He said that the drop in post-bronchodilator values could indicate a problem, but did not tell me what the problem might be or schedule any follow up. Could that drop in values be something significant, given the rest of my condition? Is there any follow up I should initiate, or other investigations?
Thank you