I came here looking for the exact same information. Should you find any would you please let me know. I have gone to a couple of links, but they don't really get to the heart of the diagnosis and prognosis.
Rheumatoid arthritis and Lupus are mentioned lots, but my family member has asthma, neither of those other two. She has been on steroids and asthma meds literally all of her 49 years. She also has blood clots in her lungs and was taking medication for those. She's now also on oxygen.
Any help anyone could give on this subject would be greatly appreciated.
Hi, thanks for your comment. I have lived with asthma all my life & i have never gotten as bad as the family member you are talking about, but i do know that things can get real bad for some people. If I do get any info on the topic you are after then yes by all means will i pass it on to you. I also have been to alot of sites but i'm the same i got nothing out of them either. This is why i am currently on this site but again to no avail have i got anywhere with the information that i do want. Even friends that i do have, have never heard of Shrinking Lung Syndrome. If you get any information at all can you please pass it in to me as this is getting frustating.
I agree there is not alot on Shrinking Lung Syndrome,I have been searching the web for the last 18 months. I am not a dr or medical student I am just someone who has been diagnosed with Shrinking Lung Syndrome. If I can answer anyones questions about my experience then I will.
I have been diagnosed this week with SLS After months of tests Its a scary thought as it sounds so drastic. I was diagnosed woth SLE Lupus back in October and feel as if I have been on a rollercoaster ever since. Lung investigations have revealed that I have had TB in the last 3 years which has caused calcification in my right lung (Which is also the lung worse affected by the Shrinking Lung Syndrom (syndrome)) so its a scary time all round. I have been on Prednisolone since Oct starting on 40 mg I am on a reducing prescription & am now on 20mg. I am on an increasing prescription for Azathioprine and am now on 150mg per day. I have been advised to try some light exercise and was thinking of starting a walking programme What are the experiences of others in managing this disease and how did it affect their overall health. I am now totally paranoid about getting chest infections as in the past I have had pneumonia, pleurisy & bronchitis.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.