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I would like to locate someone with asbestosis and learn how they are dealing with the disease. So far I have not found anyone. I am currently listed for a lung transplant.
A supportSupport Support 500 group would be the best source for you to talk with others and learn how they are dealing with asbestosis. We don't have any information on a national supportSupport Support 500 group. Most supportSupport Support 500 groups are community based. To find a group in your area, please check with your local hospital, nearest university hospital, your lung doctor, or your occupationalOccupational asthma medicine doctor.
Try search www.google.com for a pulmonary fibrosis forum (like HuffnPuff and perhaps others). Ask on such a Forum & I'm sure others will respond. Good luck in finding friends to "chat" with and on your transplant.
Aloha,
Starion--thriving in HI