my daughter has polyarticular jra. She was diagnosed at age 2 and is now 6. she has been taking enbrel for 3 1/2 years now. she has recently started bruising easily, constantly complaining of being tired and not feeling well and looks very pale, she has also had some petechiae on her chest (just a small area). i took her to her pediatrician and he did a cbc which came back normal. can someone please tell me what could be wrong with my child? i feel like the doctors don't seem to know what is wrong with her. There is something going on, but it's as if they don't know so they are giving up. How sick does my child have to get before they believe me that something is wrong with her.
JRA (Juvenile Rheumatoid arthritis) is a systemic disease (Autoimmune) in nature. Beside the joints, it affects the other parts of the body/organs.
Rashes, easy bruising probabilities are very easy to happen. We practically , don't have much option, except for getting the things under control. We really can't stop the disease.
Since your treating doctor did only CBC for this, i would recommend you to have a second opinion through either a pediatrician or a rheumatologist.
She needs to be on medications persistently and these medicines need to be taken on regular basis else the disease may flare up anytime.
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