STDs Expert Forum
Desperately needing help
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The STD Forum is intended only for questions and support pertaining to sexually transmitted diseases other than HIV/AIDS, including chlamydia, gonorrhea, syphilis, human papillomavirus, genital warts, trichomonas, other vaginal infections, nongonoccal urethritis (NGU), cervicitis, molluscum contagiosum, chancroid, and pelvic inflammatory disease (PID). All questions will be answered by H. Hunter Handsfield, M.D. or Edward W Hook, MD.

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Desperately needing help

Beginning of Feb I had sex with a csw-didnt receive oral,did protected vaginal and anal.My risk is that twice after sex she rubbed herself,then rubbed her hand over my penis tip.

Later that night the left side of my penis tip was burning (circumcised) and had an intense need to urinate constantly.As the week went on the pain was in my testicles.The pain continued to get worse,testes,back,legs,hips,it stung at the urethral opening AFTER urinating,especially upon wiping so I went to clinic.Did prostate exam,repeated tests all neg

About 2 weeks in still in pain I spotted a tiny what looked like a tear right at the very tip of my penis by my urethra.I saw 3 different dr's in STD clinic all of which said not herpes.I could not touch the spot.My skin colour,texture in places also gone lighter.

4 weeks in pain eased,but on right side of my glans (glands) I had ultra sensitive painful skin,couldn't touch it,the skin looked cracked with small bumps under it.This continued for weeks.Strange things were happening too-occasional when taking a bath,my urethral opening would be blood red,would burn intensely and itch.Next day I'd go back to the STD clinic but it looked normal.

Now 10 wks pain has eased on the right side but left side of urethral opening I cannot touch.There are small bumps under the skin like tiny pimples,but no sores or blisters,after seeing around 10 doctors all say not herpes.Also have bad pain down my legs to my knees, abdomen, lower back, buttocks.  

My doctor prescribed betamethasone valerate cream - I have been applying for 5 days made the skin smoother but no effect on the burning.I am unable to masturbate as skin gets very irritated.Prior to this encounter, all was ok

Tests done:
urine cultures
ghonn, clam, usual STDs
HIV and Syph
HPV Culture (near) the cut in skin
HPV PCR Swob of the culture and skin causing problems
General skin swob for bacteria
HSV2 IGG blood test at 2 weeks and 8 weeks  - ALL NEGATIVE

Any ideas?
239123_tn?1267651214
Welcome to the forum.

You had a prolonged discussion for 3-4 weeks on the herpes community forum, where the informal moderator (gracefromHPP) is a genuine herpes expert.  I agree that for sure you do not have genital herpes, or any other STD for that matter.  Here is why, keyed to quotes from your question:

"protected vaginal and anal.My risk is that twice after sex she rubbed herself,then rubbed her hand over my penis tip":  These are no-risk exposures.  Condoms work and hand-genital contact rarely if ever transmits STDs.

"Later that night the left side of my penis tip was burning (circumcised)...."  Neither herpes nor any other STD can start to cause symptoms sooner than 2-3 days after exposure.

'..intense need to urinate constantly.As the week went on the pain was in my testicles.The pain continued to get worse,testes,back,legs,hips,it stung at the urethral opening":  No STD, including herpes, causes symptoms like these.  Most of your symptoms, if not all, are typical for genitally focused anxiety.

"I spotted a tiny what looked like a tear right at the very tip of my penis by my urethra.I saw 3 different dr's in STD clinic all of which said not herpes."  THREE (!) doctors and you still can't accept their judgment?  This is further evidence of an obsession or phobia -- and by definition, phobias and obsessions are impervious to factual analysis and scientific evidence.

"after seeing around 10 doctors all say not herpes":  Oops, I misspoke.  TEN doctors, forsooth.

All those negative tests:  All are completely reliable.

"Any ideas?"  Yes; see above about genitally focused anxiety.  My advice is to cease trying to find a biomedical reason for your symptoms and speak with your doctor about potential referral for professional mental health assessment and care.  Your continued obsession with the possibility of herpes or any other STD, in the face of such overwhelming evidence against it, it not normal -- indeed, it is plainly irrational.  I suggest such care from compassion, not criticism.

Good luck with it--  HHH, MD
8 Comments
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Avatar_m_tn
Hi Doctor

Wow - thank you for such a speedy reply.  The large number of doctors seen is due to the way the clinics work in the UK, you rarely get to see the same person!!!  Plus they seem to think if you dont have a sore, then it cant be herpes.

I accept what your saying, what I cant accept however are the visual signs I am seeing - e.g. the red skin, the burning and itching at the entrance to the urethra after a bath (just water, no scrubbing), the tiny spots under the skin which I am unable to touch due to the pain they cause and more concerning the way the skin colour has changed on the glans (glands) to a whiter colour.

If I had none of these, I would quite happily accept this is all just anxiety.  

My main concerns as I mentioned was the genital, hand to my genital contact where some people say its possible, others dont.

The frequent need to urinate which again some people say is a symptom of herpes, others dont.

And as I am HSV1 positive, I am worried that if it was herpes, then it may not show up in bloods for a long time (I need to close the herpes door with a valid test after 12 weeks, just to fully exclude it).

With regards the steroid cream, do you think after 5 days I would have seen results - or do I need to keep using it for much longer just im concerned about thinning of the skin....?

Thank you
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239123_tn?1267651214
Sorry, but this information doesn't change either my opinion or my overall advice.  It is a mistake for you to focus on any single aspect of the many issues at hand, such as the appearance of your penis.  Read my entire reply and concentrate on the multiple lines of evidence against herpes or other STD.  Despite your conviction your penile skin looks abnormal, I suspect that is not the case, especially if that was the view of those doctors who directly examined you.  In any case, for sure neither herpes nor any other STD causes the sorts of appearances you describe.  

If your various doctor visits have not included an NHS GUM clinic, that would make sense.  There also are private sexual health clinics;if you are in the greater London area, Freedom Health is one of the best known and respected.  However, you should expect any of these options to have advice similar to mine.

I have no comment on the steroid cream -- in part because I cannot imagine what might be causing your symptoms that would respond to such treatment.  You'll need to ask the clinic or doctor who prescribed it.

Please don't be tempted to post any more "what if" questions.  Trust me on this:  there is nothing you can think to add that would change my opinion or advice.  So that will be all for this thread. Good luck.
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Avatar_m_tn
Ok thanks for the reply I do appreciate how quickly you have responded.

If I do get to the bottom of this then I shall let you know!  

By the way, yes I have been to the NHS GUM Clinics and also a private clinic called Sameday Doctor (near London) who did the IGG tests (the NHS don't do them for some reason, the NHS doctors don't believe the blood tests are accurate)

Thanks again.

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Avatar_m_tn
Just wondered if I could ask your advice on this... Yesterday morning I awoke to find two very red spots on my inner thigh near my groin, about 1cm apart , both itchy and with a head on them.

Went to the nhs clinic where they said they were noSure and took a pcr swob of their contents. Today the spots are still red, no loblonger itchy but of course the fluid has been removed.

They are not hair follicules as there isn't any hair in them. I'm thinking that the pain in my back and inner thigh was nerve pain and these two spots are now the result.

Do you think this is feasible and now after 10 weeks the sores are now starting to appear...but on my thigh not my penis? Thanks.
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239123_tn?1267651214
I meant it when I wrote "Please don't be tempted to post any more "what if" questions.  Trust me on this:  there is nothing you can think to add that would change my opinion or advice.  So that will be all for this thread."  That remains true, and I remain confident you don't have herpes and the PCR will be negative.  Continue to follow up with the GUM clinic.
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Avatar_m_tn
Hi. Just thought of update and close this thread with the news that you and Grace were correct.

The swab came back all clear and my 3 month IGG blood test came back clear as well.  Since I've stopped focusing on it, the pain has totally gone.

Thank you to you and Grace for your help and advice.
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239123_tn?1267651214
Thanks for the good news and for your kind words about the fourms.  I'm glad to have helped and I'm sure I speak for Grace as well.
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