Living with Mycoplasma Genitalium??

[Hendergab]

I'm a straight 34 year old guy, after ending a relationship with cheating GF,  got diagnosed with Mycoplasma Genitalium all this being around 2 1/2 - 3 yrs ago.., went to the Dr., after a series of consecutive STD tests that all showed negative results.. Based on my recurring symptoms (clear discharge, burning, testicle inflammation and swelling) the 4th Urologist that I saw finally recommended me to take the test which revealed the mystery behind it all...

As you probably all know, MG is a fastidious pathogen that lacks a cell wall, making it impossible to diagnose and to treat, most urologists treat it as a NGU, they recommend introductory AB's (like 1 week of doxy and cipro) that are meaningless to cure from Mycoplasma G. infection. My problem is that all of this happened while being called exaggerated on my symptoms by Drs., meanwhile time was passing by, and the infection progressed further down my prostate, even I recall one Dr. telling me it was psychological!!.

When I got the results, I ended having as treatment a course of Azithromycin 1gm dose, then 500mg for 7 days, waited couple of weeks to see results, but symptoms persisted, in fact they came back more severe and to my luck, new symptoms appeared: back pain, swollen joints, cold sores on tongue and skin redness (which I never had before), This was a immune reaction and according to the Infectious Disease specialist teamed with my Urologist back then, they assured me that with a course of 14 days of Moxifloxacin and Flomax (prostate pill) I was going to be ok//, nothing got better, at that time I was a nerve wreck, lost my job, with a bunch of other good things in my life..  

Basically, what I'm trying to find out is if there's really a cure for strong strains of MG, that are shown to be resistant to even Moxifloxacin, if so, what is the protocol>??, or is it recommended to take a new / longer course of Moxi (been several months since my last intake) I'm I find hard to believe that urologists don't answer simple questions like this nowadays---  

Its really frustrating to me that this disease is now labeled "treatable" not "curable" according to the recent 2 urologist specialists I have seen, This cannot be??, I've been robbed of my privileges of enjoying unprotected sex with my partner and eventually kids, because of this??

I want to know if there are other people on the same boat as I am?
To please come forward and share your experiences-
and also want to know, If you have found any alternatives to the treatment that worked?

[sneeth]

Thanks for that info.

I have had to email an infectious disease consultant and a MG specialist in order to get a more accurate idea of the next steps forward. With this information, I am now armed with enough to prove my present consultant is dealing with my problem in the wrong way.

Never mind getting a cure, getting an open pair of ears and an informed mind is proving tough enough!

I'll do some research on pristinamycin. It's not one I've heard of.

Thanks again

[Hendergab]

Hi there Rob, yeah, the mycoplasma test that I took back then it was a straight PCR test for mycoplasma genitalium.

I believe most of the labs in the US have this test in their catalogs..

Wish you the best, now ive been taking natural treatments to cure my condition..

[sammie21134]

what have you been doing to treat?

[Niks1111]

Are you cured after taking moxifloxacin treatment ???
Were there any side-effects that you noticed while and after taking this treatment ?

Sitafloxacin is another antibiotic that is used mostly in japan to treat Mycoplasma Genetilium.

[HongKongguy]

hey are you Japanese? did you get cure by Sitafloxzcin?

[typppp]

Doxy mostly fails because it's used way too short, 7-10 days is way too short. Heard of good results in general if it's taken at least 20 days 2 x 100 mg.

For prostatitis you can use ACC 1200 mg at once, it also affects prostate slime tissue.

[typppp]

Also check your urine every morning in a jar, as long there are some particles in it, infection is likely active. Home indicator sticks for leukozytes also help.

[typppp]

I (finally) got tested pos for M.gen and now know my enemy and can fight it. Got Moxi for 14 days, but had to stop after 3 days due to strong side effects. Anyway it seems it cleaned away a lot, symptoms are almost gone. Since today I continue with 20 days x 200 mg Doxi.

In addition I bought an infra red heat pillow which can heat up skin and tissue till 44°C. Will use it daily to support antibiotics as warmth also leads to Hyperaemia, means better blood flow in tissue, especially in mucous membranes.

M.gen has no cell wall, it's basically a wandering protein and proteins don't survive tempeartures above 45°C. As it's a bacteria it should be even more sensitive, for example Neisseria.Gonorrhea stops reproduction from 39°C and get killed from 41°C.

Simply by bathing hot with 43°C hot water my symptoms went away for several hours in the past.

This leads to the idea that heating up your lower genitals after sex up to 43°C for one hour could be a method to pretend STD's in general.

Some more facts about M.gen:
1. it can move about 1 cm per day
2. recently a protein was found which tricks anti bodies into believing M.gen would be a body cell. It's called Protein M, worth a google search as it's the reason why body alone can't completely fight by its own
3. it docks on cell and starts reprocing slowly, every 8-16 hours it devides its cell and a new M.gen bacteria is created
4. it seems it can also enter the body cell membrane and hide itself there similiar to chlamydia, that's why persistent infection can happen

[HappyNatural]

OLIVE LEAF EXTRACT AND BLACK SEED OIL!!!!

[Mgfree]

Hi,

I've had Myco Plasm Genitalleum for around 15-20 years. Very very bad I know. Though I have tried to always do the right thing.

I first noticed it back a while ago when I started drinking coffe - tho I very much doubt there is a connection with it now. I always thought it was just drinking excessive amounts of coffee and sugary drinks, eating heaps of chocolate and sweets. I used to do this a fair bit, I was worried about getting Diabetes, though I was quite young at the time. I saw a Urologist back maybe 10 years ago or around that and he said I should stop with drinkjng coffee and suagry drinks etc. last year for the whole year nearly I stopped coffee conpletely, I went cold turkey. But I kept having a watery discharge, so I knew something was up.

I had an endoscopy and also a colonsocopy (tube through the penis and buttocks) at the time. Everything ahowed up normal.

I recently have been going to a clinic. I found out about MG last year.

The tests at my doctor when I was going. Negative. At the clinic positive. After the same time results were reversed. Ive had many tests in the past.

My symptoms tho are. Leaky penis - a slow watery discharge leading to sweating and moisture around the groin area. Though at the same time, this moisture has spread to all parts of my body due to sleeping especially now in warmer months. Pevaryl has helped with the sweaty/sticky skin or washing with selsun gold/ any antibacterial washing all over the body to get rid of the sticky sweat on the surface of my skin.

My treatments have been doxcycline a number of times due to having the common cold and also one or two times being really sick (no it wasn't due to std's nor do I have any). I don't recall if the discharge stopped during any of these times.

I was just on a weeks trial of Sitafloxacin. I don't think it has worked as I keep thinking Mg and sweaty penis is linked. So I will find out my results by next week. Lately I have been letting off a lot of gas, even now as I type. So I'm not sure if the Sitafloxacin is still fighting off the bacteria or I may now have bowel problems etc.

Ill keep you guys updated.

Tho ill keep in mind like someone said, a longer dose of Doxycyline - 2 weeks at least.

I have also been on Diflucan and Zithromax which my doctor prescribed, I think i did notice a deyness in the groin area tho it reverted to sweat again.

[Gordino]

any update?

[missunderstoodninetytwo]

I need help as well i'm a 24 y.o female, and this has been complete living hell for me. The embarrassing odor, the vaginal discharge!!! Tested negative for every STD. i thought it was reoccurring bv, Metronidazole is resisting the infection and caused me to break out in a severe case of hives. Told my OB back in January 2017 that the Metro was no help she prescribed me Doxycycline for a week symptoms came back... i feel like i'm stuck in a rut, the odor is so strong i hate having sex because of the odor... and i sometimes wonder if ppl can smell me. Plz help!,i've been living with BV for yrs but now upon reading all these forums and websites online it could've been MG from the start!!!!!!!! *sign* we all need to pray

[sammie21134]

i just tested negative for this but am not convinced…the doctor didn't take this seriously and had no clue about this when i asked to be swabbed for it. I have all the symptoms of MG, test neg for every other STD, and have lyme which can allow mycoplasmas to be a coinfection. Can anyone give me some advice?Im on doxy 200 2x a day for about a week now, no too many changes in how i feel

[Gordino]

any update?

[Tom19866]

Hi I am going through this nightmare too suffering for a year and a half I have 24 hour low back pain that is crippling me , itching all over , night sweats , ringing ears , rashes , sore eyes , constantly tired , bowel problems , pain in abdomen , feel like Im constantly shaking I have lost count how many doctors and tests Iv had all showing negative Iv tried doxycycline azithromycin minocin erothmycine none of them worked I also tried moxi felt better after 4 days but suffered bad Achilles tendon pain so had to stop , I need to get some Pristinamycin but without testing positive doctors won't prescribe me anything Im in so much pain its ruined my life literally dont know what to do

[Stamfordlion]

You're problem is MG. Maybe guilt or shame because of a past event? If it is that see a councillor. They really do help

[Dehregret123]

What is the test for mycoplasma? Did you get it via unprotected vaginal sex? What are your symptoms?

[BariahG123]

I dealt with this nightmare a couple years ago -- the problem is that mycoplasma take forever to reproduce (21 days) and it builds resistance so quick. I believe people need to be on longer term antibiotics (at least 21 days) and at a higher dose. Doxycycline is supposed to have a high failure rate, but oddly enough this ended up being the only thing that worked after azithromycin failed twice and I was one of the rare Moxifloxacin/Avelox failures. Avelox worked fast to get rid of the symptoms and I thought I was cured, then lo and behold, 21 days later symptoms returned. After the test came back positive for MG again, I made my doctor keep me on the Doxycycline for 21 days and I was at a dose of 200mg. It took longer for the symptoms to go away, but they never returned. The really need to test mutations for resistance on this one before treating it and treat it aggressively. It's a tricky one.

[HongKongguy]

I had Mycoplasma in my prostate too. I took Moxifloxacin/Avelox for 3 months but didn't work. And just took Doxycycline for 1 month didn't work as well. You are so lucky dude.

[Life360_Dave]

scroll back up to the top and its a green tab on the right side says post a question

[Life360_Dave]

some else started this question and if you have a question you can hit the green tab on the top right "Post a question"

[danboy12]

I have discomfort in my penis and rectum for 15months its like a constant burning discomfort... i have been to about 10 different gum clinics and been tested for all sti's which keep coming back negative... i have been put on loads of different antibiotics such as doxycycline  azithromycin metronidazole ofloxacin ciprofloxacin.... when this problem first started i was given azithromycin and metronidazole my symptoms went away for about a month or so then re appeared went back got tested again and results still negative...  i have a camera put inside my penis still nothing.... i have recently been tested for mycoplsma and now waiting for results.... but some people are saying the amount of antibiotics i have taken already it would of cleared it up can someone answer this ?  the urologist are saying possible prostatitis too ?  

[Steve378]

What did you get for the results?

[boringuy]

i had tested positive for m.genitalium . took doxy, levo, and zithro. now only left moxifloxacin hasnt try, seems to be last resort. this bacteria already bothered me for 6 months, really want to get rid of it..cry......

[danboy12]

did you manage to get sorted out ?

[Nic-scared]

Any luck curing this?

[Wellness88]

Hello brisbane_guy:
It is great that you got cured.
What was the daily dosage of Rifampicin that you took?

[entiesean]

I'm joining in here to share my story. I'm an expat living in S. Korea and, like many others here, I found out that I had MG a few months ago after a spout of unsuccessful antibiotic treatments to what was thought to have been a mere bacterial infection. I've been on Azithromycin, and a host of other, weaker antibiotics that are usually sufficient for minor bacterial infections.

I have not tried Moxifloxacin or Moxifloxacin combined with Rifampicin, although I'm looking into that. Or Sitafloxacin, since it doesn't really seem to be available cheap online and hospitals don't seem to carry it (at least in S Korea).

I'm currently beginning an oriental medicine treatment that is supposed to boost my immune system and reduce inflammation, though admittedly I'm skeptical that this 3 week treatment will eradicate the MG.

I've tried a lot of other home remedies too, namely master tonic ( apple cider vinegar, garlic, hot peppers, onions, turmeric, ginger) , honey garlic and cinnamon mixtures, loads of cranberry juice. None of these have been effective.

It's important to stay positive though and know that there are people out there who've beaten this. It's a true challenge sent from the universe. I think it's up to us a lot though because doctors seem to know very little about this infection. As you know, symptoms can disappear and reappear weeks after, fooling doctors and medical tests.

We gotta stick together on this, because no one can care for your well being like your own self. I'm interested in getting more in-depth with this community that has seemed to form on this forum.

[AD431]

I have the same issue.
I live in South Korea and I am Positive for MG,
I tried even MOXI for 14 days.. Will go to test tomorrow again as i finished MOXI 2 days ago.
But i still have frequent urination as well as a bit burning sensation.

May I know which oriental medicine are u going to start?

[herbzcure]

Well i have only been taking these supplements for almost 2 weeks so i think it's too soon to say. Regarding discharge i only get that for a week after menstruation so i will have wait to see if that has changed. Although the swollen nodes and painful urination has actually stopped and i only have a dull pain which i can barely feel.

olive leaf extract i take has 40% oleuropein and are 350mg capsules. I take 2 capsules 3 times a day.

oil of oregano is very powerful and it does burn if not diluted it's kind of burning sensation clove oil gives. i melt a teaspoon of extra virgin coconut oil and put it under the tongue with 4 drops of oil of oregano. i use 100% pure  wild oregano oil with upto 86% carvacrol. This can cause headaches for the first few days of use so you can use less drops or only take twice a day if you  happen to get headaches, also drink plenty of water or a glass straight after.

Black seed oil i take 1 tablespoon 3 times a day.

With antibiotics whether it's prescribed or natural form, it's important to take probiotics atleast every 2-3 hours after taking an antibiotic. A good probiotic must contain live cultures and have enteric coating, i have found a 30 billion cfu. Also. taking vitamin c 1000mg 3 times a day can help with die off symptoms by removing toxins but vitamin c also kills good bacteria so probiotics are important and plenty water to fush out toxins and infection.

for external itchiness soreness pain, hydrogen peroxide 3% solution undiluted helped me more than anything else. ACV and tea tree oil made it worse!

for swollen nodes i used 50/50 extra virgin olive oil with black seed oil and very gently massaged onto the area before bed.

For painful urination drinking plenty of water is a must. Water stored in a 100% pure copper jug for atleast 8 hours in very beneficial for health and kills bacteria or parasites.

Take supplements one at a time if you have no adverse effects after few days introduce next supplement and so on.

oil of oregano and olive leaf extract are thought to be the most powerful herbs. Black seeds are a cure for every disease.

When using supplements for diseases consistency is the key. It can take up to 3 months of high doses before you can lower the dose of the supplements and then continue take recommended daily allowace to stop it coming back.

Diet is also a big factor. Any sugar or sugar forming foods, breads, rice, pasta, etc... cholestrol foods, l-argirnine amino acid will feed the mycoplasma so need to be avoided which i know is difficult.

I will keep updating if see anymore improvements.

God has not sent a disease without sending a cure for it. It's all about finding it and being consistent.

[MJ_Smith32]

Have you gotten rid of your mycoplasma. I have had it for two months and have tried doxy for 14 days, moxi for 10 days, and minocycline for 10 days. While I was taking Moxi the discharge completely went away, but now it is back. I do not know what to do please help.

[herbzcure]

i was taking black seed oil to help cure my lupus within a week of taking i became quite ill. swollen glands, fever, nausea etc... and had some tests taken and tested positive  for mycoplasma genitalium. As black seed oil or any alternative can make any illness worse before making it better.

I didn't take any antibiotics instead got onto Olive leaf extract, oil of oregano, black seed oil, vitamin c, probiotics with multi vits. i first started taking olive leaf extract with no reaction, as soon as i added oil of oregano i started to get headaches but started drinking more water and lessened the dose. I have now added vitamin c, probiotic with multi vits and black seed oil again.

I'm just curious as to is it normal to feel so ill and then feel better again? I haven't taken any medication apart from what's listed above.

[MJ_Smith32]

Please help.. 23 year old male
I was diagnosed with MG a month and a half ago. I was given 14 day prescription of doxy which did not work at all. I then asked for Moxifloxacin and was given a 12 day prescription. I finished taking Moxifloxacin 10 days ago. My discharge went away, but I feel that I need to pee a lot through out the day. When I pee it almost feels normal. It burns slightly though.
Last night I had sex with a condom and after I was done I went to pee and it was horrible pain. I am worried that it wont go away. I don't know what to do please help.

[HongKongguy]

I am 29 and have been suffering Prostatitis for over 3 years. I was diagnosed that there are super high Red Blood Cells and Bacteria of my Prostate secretion in Singapore. The doctor said that the specific pathogen can't be tested in Singapore but 99% is MG. So I was prescribed Moxifloxain. There is a great improvement in the first week. But I have the terrible feeling to my public area on the ninth day. I have no idea does it work or not right now.

[urgentpapa]

how are you now?

[HongKongguy]

I had done 3 months Moxi but it didn't work.
3 months I went to Toronto and did a genetic test to my prostate secretion and semen, Mycoplasma was found. I took Sulfatrim, Amoxi Clav, Doxylin and Alfuzosin and Meloxicam in 3 different period in 3 months. But I still feel so pain in my lower abdomen. I have no idea what to do right now. maybe try Budwig diet....or go to die..

[ktakeat123]

for the MG living with .

i tired antibiotics called diflucan 150 mg  4 pills every 5 days its was very good
during when i was take it .

but after finish course of cloithromcin and doxy and difflucan
i feel the Symptoms its come back .
although i test Negative for MG after finish the course .
i make another test again after about 20 days i am waiting for the result.

my balance is gone i can not see good or focused in any thing any more i feel weak .
good thing i test negative for all other STD after 4.5 Month .

i will try to see another doctor .

[Silly_13]

Forgot to mention, was prescribed doxy..