not ambiguous anymore

[rojas66]

i posted a question or 2 last month about my questionable herpes diagnosis.  i had 6 negative herpeselect tests over the span of a year all negative.  this was after diagnosis of herpes by nontyped viral culture.  the feeling from the forum doc was that i didn't have herpes.

my gynecologist remained unconvinced of, and so i had a western blot test done and received the results today.  i am positive for hsv 1.  so now i have to figure out other symptoms i'm having.  i have been getting sharp pains at different places around my body that have started in the last year.  my toes, hand, top of my head, eye, back, breast, etc etc etc.  i'll get the pain once, and then it stops with no outbreak of any kind.  since herpes was the impetus of the lichen sclerosis i have developed, then i feel it's sensible attribute these other symptoms to herpes too.  it has all happened ince the herpes.

any ideas?

[gracefromHHP]

Lichen sclerosis is probably an autoimmune type issue - not due to herpes.  None of your other body symptoms are probably due to herpes either.  

Don't get stuck in the everything in my body is due to herpes way of thinking - it only keeps you and your doctors from figuring out what is going on.

grace

[rojas66]

thanks for your reply grace.  there is no for certain cause of lichen sclerosis.  autoimmune is definitely one theory, but i know that in this situation, it was the herpes virus that caused me to develop it.  it's how my body reacted to it, it all came about at the same time.  so, i believe that my body is, maybe, overreacting to herpes.  and these pains that i get have also started since i got herpes.  my response to it has been an anomoly since day one, and i believe it's related somehow to these neuralgias i'm getting.  maybe the virus is running up and down my spinal cord looking for a place to call home.....  maybe it will just get tired and give up.  my humour for the day.  

[gracefromHHP]

I pointed your post on webmd out to Terri for her to comment on but I don't think she's gotten to it yet. Please continue to check back there for her professional opinion on it all.

grace

[rojas66]

thanks so much grace.  i was hoping she might have some insight on this.

[gracefromHHP]

She did finally reply but it's on the 2nd or 3rd page over there now so you'll have to search for it. Any replies to her reply should be a new post so it gets seen. Neither she nor I go back more than the first page when we reply over there.

grace