Aa
Dx???
I went to my appt. at the MS Center. I didn't like the doctor as well as my regular Neuro. He did as expected and ordered a bunch of tests.
It is nice that they have a computer system in place that allows you to access things like tests results as quickly as the doctors. All my blood test results were posted the next morning and they were normal. You also have access to appointment notes. I 'Copy and Pasted' this from my appointment notes it says:
"When: Thursday April 05, 2012 4:00 PM
Where: Neurology (NEURO)
Reason for Visit: Other
Diagnosis: Ms (multiple Sclerosis)"
He didn't tell me that I had a Dx, but doesn't it seem odd that he put this in the notes?
It is nice that they have a computer system in place that allows you to access things like tests results as quickly as the doctors. All my blood test results were posted the next morning and they were normal. You also have access to appointment notes. I 'Copy and Pasted' this from my appointment notes it says:
"When: Thursday April 05, 2012 4:00 PM
Where: Neurology (NEURO)
Reason for Visit: Other
Diagnosis: Ms (multiple Sclerosis)"
He didn't tell me that I had a Dx, but doesn't it seem odd that he put this in the notes?
It is strange that he would put MS in there and not discuss it with you at all. But, my neuro did the same thing and I only found out by accident what he was thinking when I saw the intra-hospital order for my MRI. I don't know why so many of them choose to be so non-communicative, but it seems to come with the territory.
Luckily the 19th isn't too far off. Will you find out right away what the results are? As for LDN, I hope they let me try LDN as well before one of the DMDs. If you do start on it, I'll be interested in hearing how it goes. :)
Wishing you well...
Luckily the 19th isn't too far off. Will you find out right away what the results are? As for LDN, I hope they let me try LDN as well before one of the DMDs. If you do start on it, I'll be interested in hearing how it goes. :)
Wishing you well...
Maria, too bad you can't find that paperwork. It would be nice to show it to the Dr. and ask for clarification!
Sidesteps, THOSE Dx make a lot more sense if they're not sure!!
Sarah, here is the long story of my appointment.
Well, the doctor is a stereotypical, uncommunicative Neurologist, and I'm sure you all know what I mean :) He didn't do anything wrong really (other than putting a Dx that serious in the notes but not mentioning it in person:) but he is very perfunctory.
I had put together a very concise 9 page timeline which he read while I was doing paperwork and having my vitals checked, He asked for clarification of a couple things: I had mentioned that I had had a score of '0' on a patellar reflex test in '08 but a '4' this time, and he wanted clarification of that score of '0'. And I have an old back injury in my T-spine area and the doctors notes are so brief they are useless and they say they can't locate my MRI and X-rays. He wanted to know what exact level and I didn't know. He didn't say much of anything other than that we needed to run more tests
He asked me if I had any questions and I really didn't. My other Neuro and this site have pretty much answered any questions I had at this point and I was not at all comfortable with the man, so I said, "None that can't wait until the test results are in." He then just told me to schedule the tests and a follow-up appointment. He asked me if I felt I needed any medication for symptom relief: muscle spasms in my right leg and IC were the ones he mentioned. When I declined and said I was managing well enough with holistic approaches (Valerian Root Essential Oil is amazing for both issues!) and I don't care for prescription pain meds, he appeared to find that as irritating as I found his attitude. He told me I must not be in much pain then, and I said everything is relative but that holistic approaches can be very effective and and that I have a high pain threshold. I do! We were hosting a BBQ the first time I went into labor, and we just continued it. Most people didn't even know I was in labor even after my water broke. And I didn't want to miss my oldest daughter's first soccer game, so I went to that in labor with the 3rd one and no strangers even noticed. I have been kicked in the knee by a horse and continued the training session and had a barn door slam shut on my foot taking a notch out of my Achilles tendon that I didn't know about for about 8 hours until all our company went home and I tried to take my boot off but it was stuck to my foot with dried blood. THEN it hurt like HE!! when I could see my tendon and it scared me to death that I had been riding and walking around like that all day. But I never elaborated at all to this doctor. He gave me an odd look when I said I have a high pain threshold and I didn't feel it was worth any effort to try to convince him that I do.
I was early for my appointment because I had allowed more time than I needed to navigate the 600 acre medical complex that is notorious nationwide for a horrible lack of urban planning and nonstop construction projects. My daughter's cardiologist is on this same complex and it can be a nightmare. But somehow I ended up being finished with my paperwork 20 minutes before my appointment time and he was running early (not surprising after experiencing his robotic personality) so I was out of the appointment by the time it was supposed to have started.
I find it highly doubtful that this will be a functional Doctor/Patient relationship! I hope that there are other places to get 3T MRI's by the time I need to do this again!
My MRI's are scheduled for 4/19. I am STILL holding out hope for Lyme's so I will see what happens with that on the 25th. The main thing I wanted out of this visit was the 3T MRI's so that I will have a very good baseline to know if I am gaining anymore damage while I pursue Lyme's treatment and honestly, at this point, if the Lyme's Treatment doesn't work, I plan to try LDN before I resort to one of the CRAB drugs. If I ever get another flair up even close to the one last fall, I will be ready to reconsider, but I have long since passed up the 'early stage' anyway since this appears to go back to '04 or '05. I will also reconsider if any changes are found on my MRI's when it is time to reevaluate.
I should have asked about an appointment with the Opthal Neuro that works in the same clinic, but I am hesitant. There is only one and he has horrible reviews thru those online sites that let you rate doctors, Everyone gives him a '1' for bedside manner and communication. ;( I wish there were another option in the region and I am still looking into that. Strangely, this doctor got above average ratings so maybe I'm the only one who thinks he has too much in common with Christina from Grey's Anatomy. :)
Reading that Dx really did get to me a bit, but I guess I will just not dwell on it until I go to the follow up appointment.
Sidesteps, THOSE Dx make a lot more sense if they're not sure!!
Sarah, here is the long story of my appointment.
Well, the doctor is a stereotypical, uncommunicative Neurologist, and I'm sure you all know what I mean :) He didn't do anything wrong really (other than putting a Dx that serious in the notes but not mentioning it in person:) but he is very perfunctory.
I had put together a very concise 9 page timeline which he read while I was doing paperwork and having my vitals checked, He asked for clarification of a couple things: I had mentioned that I had had a score of '0' on a patellar reflex test in '08 but a '4' this time, and he wanted clarification of that score of '0'. And I have an old back injury in my T-spine area and the doctors notes are so brief they are useless and they say they can't locate my MRI and X-rays. He wanted to know what exact level and I didn't know. He didn't say much of anything other than that we needed to run more tests
He asked me if I had any questions and I really didn't. My other Neuro and this site have pretty much answered any questions I had at this point and I was not at all comfortable with the man, so I said, "None that can't wait until the test results are in." He then just told me to schedule the tests and a follow-up appointment. He asked me if I felt I needed any medication for symptom relief: muscle spasms in my right leg and IC were the ones he mentioned. When I declined and said I was managing well enough with holistic approaches (Valerian Root Essential Oil is amazing for both issues!) and I don't care for prescription pain meds, he appeared to find that as irritating as I found his attitude. He told me I must not be in much pain then, and I said everything is relative but that holistic approaches can be very effective and and that I have a high pain threshold. I do! We were hosting a BBQ the first time I went into labor, and we just continued it. Most people didn't even know I was in labor even after my water broke. And I didn't want to miss my oldest daughter's first soccer game, so I went to that in labor with the 3rd one and no strangers even noticed. I have been kicked in the knee by a horse and continued the training session and had a barn door slam shut on my foot taking a notch out of my Achilles tendon that I didn't know about for about 8 hours until all our company went home and I tried to take my boot off but it was stuck to my foot with dried blood. THEN it hurt like HE!! when I could see my tendon and it scared me to death that I had been riding and walking around like that all day. But I never elaborated at all to this doctor. He gave me an odd look when I said I have a high pain threshold and I didn't feel it was worth any effort to try to convince him that I do.
I was early for my appointment because I had allowed more time than I needed to navigate the 600 acre medical complex that is notorious nationwide for a horrible lack of urban planning and nonstop construction projects. My daughter's cardiologist is on this same complex and it can be a nightmare. But somehow I ended up being finished with my paperwork 20 minutes before my appointment time and he was running early (not surprising after experiencing his robotic personality) so I was out of the appointment by the time it was supposed to have started.
I find it highly doubtful that this will be a functional Doctor/Patient relationship! I hope that there are other places to get 3T MRI's by the time I need to do this again!
My MRI's are scheduled for 4/19. I am STILL holding out hope for Lyme's so I will see what happens with that on the 25th. The main thing I wanted out of this visit was the 3T MRI's so that I will have a very good baseline to know if I am gaining anymore damage while I pursue Lyme's treatment and honestly, at this point, if the Lyme's Treatment doesn't work, I plan to try LDN before I resort to one of the CRAB drugs. If I ever get another flair up even close to the one last fall, I will be ready to reconsider, but I have long since passed up the 'early stage' anyway since this appears to go back to '04 or '05. I will also reconsider if any changes are found on my MRI's when it is time to reevaluate.
I should have asked about an appointment with the Opthal Neuro that works in the same clinic, but I am hesitant. There is only one and he has horrible reviews thru those online sites that let you rate doctors, Everyone gives him a '1' for bedside manner and communication. ;( I wish there were another option in the region and I am still looking into that. Strangely, this doctor got above average ratings so maybe I'm the only one who thinks he has too much in common with Christina from Grey's Anatomy. :)
Reading that Dx really did get to me a bit, but I guess I will just not dwell on it until I go to the follow up appointment.
It's odd to me Val. All my chart notes listed other things as the diagnosis until I actually had my MS diagnosis. They were ---- Optic Neuritis, Hearing flucturations, Nystagmus, Double vision, Myoclonus, Muscle Fasciculation, etc. Everything BUT MS... lol~
Hi Val perhaps it is the diagnosis that they are looking at no that doesnt make sense even to me lol. What i mean is are they looking at MS to diagnose you with...as you went to an MS Centre if that makes sense lol.
I have a memo from my physio to my GP and the heading was something like diagnosis MS.....but no one has ever told me that, so I am assuming its just them saying they are looking at MS...She more or less said there was nothing she could do with me as it was not in her field of expertise, I believe you need someone who specialises in MS physio....
I wish i could find my paperwork i put it safe and cant find it now lol.
I have a memo from my physio to my GP and the heading was something like diagnosis MS.....but no one has ever told me that, so I am assuming its just them saying they are looking at MS...She more or less said there was nothing she could do with me as it was not in her field of expertise, I believe you need someone who specialises in MS physio....
I wish i could find my paperwork i put it safe and cant find it now lol.
Odd for sure. When do you have your next appt with him? I would definately ask for clarification.
Did he say anything or give you any inkling as to what he was thinking? I have heard (or actually read) lots of good things about that hospital/clinic.
Did he say anything or give you any inkling as to what he was thinking? I have heard (or actually read) lots of good things about that hospital/clinic.
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