FINALLY starting treatment any advice ?

[MrsAristotle]

Well you know my story lol...yada yada, 6 years waiting, being finally told I probably had Lymes, a co infection and MS.......

So after seeing the Lymes doctor in August, I finally made a huge fuss and was told the letter to my GP had not been sent, and was still in my file....so I made a real fuss, and FINALLY it was faxed to her 2 weeks ago. Its taken that long to get an appointment now to see my own doctor.

In this letter she told my doctor they had found abnormal signs of Lymes etc, and one of the recommendations was to take a cycline for 3 months....also she wanted me to do loads of detoxing and stuff.

So FINALLY I got this letter faxed 2 week ago but only got to see my doctor yesterday.

So she has agreed for me to start on doxycycline (I think...I know it is one of the cyclines anyway). I have a script for 2 weeks, to see how it goes and she will give me more as and when I need it.

She has NO CLUE ABOUT LYMES, I even printed off a load of information for her, and also about herxing etc. She was amazed at my knowledge and said she needed to do some reading herself...

Anyway i am excited and scared too lol

The last time i had tetracycline, i had all the rash come out like cats scratches, was diagnosed with chicken pox, and then a reaction to antibotics. Now my doctor realises that this was probably a reaction to lymes.....not CP.

I start on Monday.

Any advice please? What can I expect if anything, and should I be doing anything else, taking anything else etc.

OMG wouldnt it be amazing if after all this time I woke up one morning and it was all gone.

Thanks for all your support and advice on here.

You guys just ROCK.

Big hugs. Mariax

[MrsAristotle]

Been ill with a rotten cold and cough, so rang my doctor on Friday and she said to wait to start the antibiotics, I have enough to cope with at the moment, i suppose another few days will not make the difference to the Lymes. I feel a bit better this morning but have been struggling for a few days.

So Hopefully will start sometime in the next few days, i just think i need to be 100 per cent before i start just incase i do have a reaction.

[Mables3]

So glad you finally got an answer. I don't know alot about the treatments. My friends daughter has it and she did not want her taking meds just yet. Poor thing couldn't make it through a soccer game. She had fatigue and achy joints.

They are trying to handle it through diet. No sugar, less gluten. Some other things. I'm not sure what. She has had some positive results.

I'll keep my fingers crossed for you! Cheryl

[Jacksmom516]

Hi Maria

So glad that they are finally treating you!  I too do not know much about Lymes treatments.  There is a young man at my pt office who had it so badly he was bed ridden and finally after treatments -  he is running, playing hockey and doing so well.  HE was dx'd at 17 and will be 21 next week,  He is my inspiration to keep moving!  

I hope you  handle the treatments well and  I'm with Jibs - it would be so nice if we woke up tomorrow and it was gone or at the very least there was a cure!

Love
Tracy

[UnsureMS]

Hi I know nothing about Lyme disease. But congrats on getting a dxs. There is a user who is always giving advice on lymes. You should try messaging him. Ricobord I believe is his user name. He could probably give you advice about treatment.

Congrats again, and I pray that your journey begins to turn around. May The Lord bless you.

[jibjen]

Hi sweetpea,

I can not comment on medication but can certainly say I am happy you are finally going to be put on SOMETHING for all of this!

I am so glad this is starting to turn around for you and YES it would be amazing if tomorrow we all woke up and this was all GONE (wink wink)

I am thinking of you and hope this works!

Love JibJen