Hello Friends! Just thought I'd pop in to let you all know that I am still around. I know I haven't posted or come around in a REALLY long time....
These last 6 months or so have been a real roller coaster for me, which has contributed to me not being around. As some of you know I got my dx last Dec or Jan (I can't even remember anymore. I think it was Jan). About 4 months ago I got my dx taken away from the neuro. It was taken away because there were no changes in my MRI in the last year.
Ever since then, I have not gone back to see any doctors except to get my medications refilled and 2 trips to the walk-in due to severe pain. I am slated to go back to my original doc in about 3 weeks to see where we go from here.
On a positive note, I got fitted for a new AFO that I should be getting this week. It's called "Toe Off" and it's supposed to work fairly well. So I am hoping that will make me a little more mobile, (I've gained about 30 pounds in the last 1 1/2; 10 in the last 3 alone!) so I can lose a bit of this weight.
Anyhoo, I hope you are all doing well! I also want to thank those of you who have continued to send me notes and emails with words of encouragment, thoughts, prayers, etc. Although I don't know if I will be hanging around much, I am still here and pray you are all having relatively symptom free days/weeks/months!
It is so good to hear from you. I've sent a few notes from time to time but just know that I pray for you daily and I will contiue to do so.
Good news w/AFO. Yeah! I hope it helps and I hear you on the weight gain.
I"ve got my share to lose too!
Well, please take care of yourself and I will be praying that your upcoming appt will be of benefit and of the good for you. Prayerfully this Dr will be a good one and you will get answers and dx'd with out them taking it back.
Limbo #*#*$. But God is still good!
So good to hear from you! It is so funny - I was just thinking about you on my drive into work - what a coincidence! Why your doctor took away your dx because of no change in MRI is beyond me. My doctor was thrilled that I didn't have a change at my one year MRI = doesn't mean I don't have MS just means that there has been no progression. Find a new Doctor if the original one doesn't give you answers.
Hope the AFO works well for you and you can be more mobile - I know you have small kids so this would be great.
Don't be too much of a stranger - and I am always here if you need me
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