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956292 tn?1334054869

Just Checking In

Hey All,

I just wanted to check in and see how everyone is doing...I have been trying to stay in touch but...well....Things are hectic...I have been feeling horrible..thinking it has been due to being overheated, STRESSED to the Max at work and just well....Me...and my MS

I had a meltdown with work and my supervisor...FINALLY..I guess maybe I needed it..boy did I get support from my TEAM..I did not think I would .My supervisor knows about my MS and I told her the work STRESS has been really making me "ill" lterally...She is awesome...she is also a good friend and the TEAM is ordering me to take a vacation...We are going through a tough time and I am one of the "guru's" of the system  for the State and I am doing everyhting I can..BUT it is everyone else that needs to get it done...

Long story short..my work has been great...and I told them I was going to change my vaca to a week later  to help get them cleaned up in back in order before our deadline then go ...


The heat has gone away and it is nice and cool now..my symptoms are still around though...I left a message for doc and missed his call so I will follow up tomorrow..Still do not think it is a flare for me just the heat and stress bringing back "old stuff"

I hope you are all well. Hang in there...we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers...

Love you

Jenny
8 Responses
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2012515 tn?1353875525
Hey Jenny,
So glad you was finally able to talk to your supervisor and that they are all very supportive.
That is a blessing!
I hope they realize how great you are to stay and work until they get all in order before you finally get the much needed vacation you deserve.:)

When you do take that Vacation, you and your furry ones relax and get pampered.Enjoy family and friends and try to DESTRESS!
I will be praying the Lord will bless you with feel good days and the rest you need to get re energized.

Take care and thankyou for all the support you give us here in Limbo.
Hugs and blessings,
Tammy:)
Helpful - 0
Avatar universal
thanks, maria, for the perspective on the lyme treatment.  i guess i'm impatient since my big issue is that i am sensitive to the antibiotic treatment and i am having to go the herbal/natural remedy route.  i can't remember--did your doc run HLA genotyping on you to check for your genetic susceptibility to infection, mold, toxins, etc.?

i welcome your visit, maria.  i love where i live--i just wish i could get out and enjoy it more.

love you, too.

xoxox
Helpful - 0
551343 tn?1506830518
Hi Binx

I read up so much about Lymes it can take several years before you start to feel any better, so dont loose hope, everytime you attack it, it will try and attack you back, but keep going as with determination you will rid yourself of these invaders but it does take time.

I believe that nowadays we have to be in charge of our own health, these specialist only see you for one thing, and that was your operation, and yes you are probably fine now with that but they are not interested in anything else.

IF I do have Lymes I too have a longer journey ahead of me. I know just taking antibiotics for simple things like ear infections have made me iller then it should and I am now sure its because it was stirring up the hidden enemy.

Take heart hun, me and you are going to meet I am determined to get well to go on holiday that is my goal. It might take me a few years yet, but I am going to try my hardest.

We have bought ourselves a new beastie yesterday a superb Ford Consul lowline 375 classic car. I am doing it to give me a reason a purpose to get out. I want to go to classic shows. We have now built a proper trailer for my mobility scooter so I can go out more now with Mike. I am determined to do things one way or the other. I must admit the last few days have been hell for me, I have no idea why, but i think its just overdoing it with the chicks and stuff but a few days rest lol........

I think we should use that motto. Love u hun.xxx

"we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Helpful - 0
Avatar universal
dear jibby,

it is good to read about what's going on with you and to catch up.  as you know, i have intended to be more present here as well, but things have been hectic on my end, too.  i wonder if they will ever not be hectic again; but everything is so much harder when dealing with chronic illness.

i am glad to know that your work is being so supportive of you--that has got to be a load off.

a flare up has been building on my end for the past week or so, and things are feeling pretty scary for me today.   i saw my neuro about 6 weeks ago and she dismissed me--said everything's just great since my disc surgery 18+ months back and that i've just been getting better and better.  it's like she doesn't even see or hear me.  i haven't had an MRI in almost 2 years and i won't be getting another one any time soon as far as she is concerned.  as far as i'm concerned, it looks like neuro #3 is a bust.  

i am following through with the naturopath who is working with me on lyme & co-infections, but things are slow going with that.  i also had a bunch of mold removed from my house and will be taking mold clearing medications starting on monday.  i pray it helps.

by the way, i loved this.  it should be our mission statement here in limboland...

"we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

oxxoxo
binx

Helpful - 0
1760800 tn?1406753451
Hey Jenny

So glad you got the support you needed at work!  Know what you mean about Stress though!

Its been kind of a bad week for me -  SX are okay just a bad one in the head -  I know that they are gonna happen from time to time, but this is the first since my dx in December and it is getting to me -  I know it is stress - working all the time and the thought of what would happen if I didn't,.  Think I am taking a "sick" day monday just to hang with the four legged babies and just be!

Happy for you that there is a vacation on the horizon for you!  They do make all the difference

Cooler here but so humid it is like a steam bath out there today!

Have a great weekend

Tracy
Helpful - 0
2112931 tn?1335098402
Ricobord, unfortunately I only had the MRI without contrast. Wen my PCP ordered it, she had no idea they would find what they found.  I can't afford to get another one, so I will have to wait until next year to get one with contrast.

I don't expect much on Monday. It was originally supposed to be a follow up for the migraine meds. It still is, but I should get the VER results as well since they haven't called yet. I'm assuming the results are normal. I hope it is. Crossing my fingers and toes.
Helpful - 0
Avatar universal
Jenny, Sorry to hear about your stress at work.  I remember that kind of stress and what a toll it takes on a body.  I think people who are well have no concept of the reduced capacity for stress that chronically ill people have. I am amazed to realize what a significant impact stress has on our bodies and our immune systems.

It is terrific to hear that your team is supportive.

Sandy- Sorry to hear you're uncomfortable. I hope you have a good a/c!  

That is a lot of lesions! I have about 20 and I thought that was a lot. Are any of yours enhanced with contrast?  (Sorry if you have already posted the answer to that question.). Do you have any expectations for your Monday neuro appt?
Helpful - 0
2112931 tn?1335098402
Hi Jenny,  sorry you're not feeling well.  I wish it would cool down here. Still really really hot. That's great you work with people that are so supportive and understanding.

I'm still in limbo. LP came back normal. MRI shows extensive hyperintense periventricular lesions. It appears there may be 40 of them. Most are small. Biggest one is 3/4 inch. I had a VER test on July 3rd but don't have results yet. I should get those results at my neuro follow up appointment on Monday.

This heat is bothering me. Feel exhausted, weak, light headed. I'm ready for fall.
Helpful - 0
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